Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-13-2009, 03:26 AM #61
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The Dynatron STS is classed as an inferential therapy device:

http://docs.google.com/gview?a=v&q=c...Y8MnrZ7YwJ3y3w

Quote:
Dynatron STS and Dynatron STS Rx received 510(k) classifications in May 2001 under the
classification name Interferential Current Therapy Device.
The FDA has indicated Dynatron STS and Dynatron STS Rx for “providing symptomatic relief
of chronic intractable pain and/or management of post-traumatic or post-surgical pain.”3
No mention about "cure".

more here:
http://www.dynatronsys.com/html/faqs.htm#6

Inferential therapy is available at most physical therapy rehabs.
I had it done for a tendon injury.
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Old 10-13-2009, 11:51 AM #62
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Default Hi,

There isn't a cure for RSD no matter what the treatment. It can go into remission but I don't believe anyone is cured from it. There are a lot of things approved by the FDA but it doesn't mean they cure things.

Ocelyn, you were talking about Drs. checking out other Drs. to see which might be the best for us, I don't believe they would know who is the best no matter how long they talked to them. It's up to us to find that right Dr. that will do what we need done for us. From what I have seen on here, it's sure usually not the first one we see either.

I spent years on the TOS forum also. On BT and NT. Glad you are joining us.

Janet, I hope Carrie can help you. She seems to do pretty good with the pain pump and two little ones to chase after.

Ada
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Old 10-13-2009, 06:43 PM #63
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Hi Ada,
I really hope that Carrie can help me too. I want a "real" doctor so bad that I can almost taste it. I did find another one just in case it doesn't work out with the one that Carrie is seeing. He is my first choice though, but hopefully the other one that I found will have the capability to listen to what I say. It would be such a switch from what I have now. I should find out whether or not Carrie was able to use her pull somewhere around the 5th of November---thats when she see's her doctor. Im going to try to have to one that I found lined up for shortly after that -----just in case. I see my PM doc on the 2nd of November. I just want to make sure that I have enough pain meds while I try to find myself a "real" doc. Thats going to be soooo nice. Something that Im definitely not used to. It shouldnt be that way---but it is. Unfortunately!!
The rain is getting ready to hit again so its not going to be a good couple of days around here. We dont like the rain around here. Hopefully we wont need to think about building an ark--the last bout of rain we had---it was definitely a thought. Hope that you arent going to get any of this rain. It just increases the pain level-----way up there, if you know what I mean.
Thanks again,
Janet
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Old 10-14-2009, 06:50 AM #64
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Hi all,
I know that this might sound a little strange, but thats me. Ive been told that Im not normal. I have a question & Im hoping that someone might know the answer. I was wondering if it was at all possible for the crps to go into the ribs. My ribs have been hurting now for a little over 2 months. I was in my manual wheelchair & the kitten thinking that the wheels were a play toy---so I leaned over to get her out & ever since then, my ribs have been really hurting. I cant take a deep breath & coughing hurts more than you know. My PCP took an x-ray & they arent broken or anything like that, but they still hurt.
I have an appointment with her on monday to see if she can order another test to see if anything shows up, I was just wondering if any of you might know whether or not its a possibility of it spreading to my ribs. Sure would appreciate any & all answers. Thanks.
Janet
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Old 10-16-2009, 06:10 PM #65
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Hi everyone,
Sorry that Ive not said anything for a couple of days but I had a really bad night on wednesday & all day thursday. I was up all night on wed. from the pain of having to ride in the car in the rain to hubbys appt. because I cant get my sister to leave her "tv" to come sit with me. I cant be left alone at all & she knows that---but tv is more important that I am. We've tried telling them to leave the mail in the box that I will be getting it--but that doesnt work. Brother in law still gets it---no matter how many times we tell him to LEAVE it for me. But then they think that taking a advil for this kind of pain really takes it away--no matter how many times we've told them otherwise.
I dont know what its going to take for them to stop getting out mail--asking them not to doesnt work, getting their mail---doesnt work. The day after I got my jazzy---we were on our way down to get the mail & was less than 2 feet away & he (b-i-l) still got it & handed it to me.
Ive been confined to the front porch for over 2 years---I dont know why they dont understand why I would want to get my own mail or why I want to even leave the house.
Sorry for rambling---its just been one of those days.
Believe it or not they are calling for snow flurries here for tomorrow morning & its already colder than it was this morning. Well I hope that ya'll are having good weather & are having good days. Hope to hear from you soon.
Janet
P.S. Hubby got a fire going in the fireplace.
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Old 10-16-2009, 06:53 PM #66
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Default Hi Janet,

I have been told that I'm not normal also. I had a wonderful PA for the first 5 years of my medical issues and he told me that I would make a great College study.

As far as the ribs, I have pain in my right rib area. I have been told it was RSD and scar tissue from having my gall bladder removed and from having shingles years ago.

I don't think anyone gets the gist of how much pain we are in. I was just telling Diana that. I don't think the pain we deal with is explainable to the extent we need it to be somehow. If that makes any sense.

I hope that you start feeling better and that you get to see a good Dr. here soon to help you through this. It's sure not something we can seem to get through with Advil like your family is thinking.

Maybe you could let them read some of what we all write on here and it might help them understand.

Ada
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Old 10-16-2009, 07:31 PM #67
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Hi Ada,
Its good to know that Im not the only one that isnt "normal". lol lol Its good to be not normal, if you know what I mean.

I had my gall bladder out years ago also, all I know is that the ribs hurt & they arent getting any better. Its been over 2 months since they first started to hurt.

It helps that the rain has stopped---atleast for now. That definitely doesnt help the pain---as you well know. They said on the news last night ( I think) that out of the last 200 & some odd days that it has rained every other day & that there was only 5 days that we've not had any rain at all. YUCK!!! This is supposed to be the "driest" month for us, sure hope that it drys soon.

I hope that I get a good doctor soon too. I talked to my nurse case manager yesterday on the phone & told her that Carrie is trying to get me into her pain clinic, but I also gave her a name of another doctor that I found on the internet. Just as a "backup" & she said that she tried calling the doc but they are closed until monday.

I dont know if anything would get across to them how bad I hurt on a daily basis. Ive printed out different things that Ive found about pain & it doesnt register to them at all.
I truly thought that me telling them---not that they havent seen me this way for over 2 years that Ive not been able to do anything, that it would get through their heads that when I said that I wanted to get the mail that it would work. I mean who see you going to it & still gets your mail. He (b-i-l) said the other day that because it was "cold" that he didnt think that I wanted to go down there. Its like they are the "inspectors" of what we get. They even went as far as telling the "ups" drivers to deliver our packages to them---but I took care of that today. Im really trying to not to be difficult about the whole thing but it gets to a point that enough is enough. I really dont understand why they feel the need to see everything that we get. Maybe one day they will surprise me & leave the mail for us to get. Sure do hope so anyway.

Are you having warm weather? Like I said hubby has a fire going---its down right chilly here. BRRRRR!!!!

Hope to hear from you soon.
Janet



Quote:
Originally Posted by dreambeliever128 View Post
I have been told that I'm not normal also. I had a wonderful PA for the first 5 years of my medical issues and he told me that I would make a great College study.

As far as the ribs, I have pain in my right rib area. I have been told it was RSD and scar tissue from having my gall bladder removed and from having shingles years ago.

I don't think anyone gets the gist of how much pain we are in. I was just telling Diana that. I don't think the pain we deal with is explainable to the extent we need it to be somehow. If that makes any sense.

I hope that you start feeling better and that you get to see a good Dr. here soon to help you through this. It's sure not something we can seem to get through with Advil like your family is thinking.

Maybe you could let them read some of what we all write on here and it might help them understand.

Ada
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Old 10-19-2009, 07:19 PM #68
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Hi everyone,
Just wanted to update you on one of the pain doctors that I was hoping to see. I found out today that he only deals with workers comp---so that definitely leaves me out.
I did find out that according to my nurse case manager there is another part of the insurance company ( I think) that will help me find a different PM doctor. She was sending them an email while we were on the phone this afternoon & she told me that they would be calling me back in anywhere from 24-48 hours. I told her to be sure to include the one that Im seeing now as someone that I dont want to see. Im really hoping that together we can find someone to treat me & who knows a little bit about what Ive got. Sure do hope so anyway. I will let you know when I hear something. Sure do hope that its good news for a change. I did find out today that I cant get a regular mattress for my hospital bed, so Im stuck on the spring one that I have until I can come up with the money to buy something on my own. Im still waiting for disability to do something. I dont know what they are waiting for to be honest with you because I checked their website & what I have is an automatic according to what they have on their site for me to get disability. I need that money badly.
Sure has been cold here--we were at 27.5 this morning & tomorrow is supposed to be close to that---but its supposed to warm up after about 10:00. Have a appointment with my PCP tomorrow afternoon---for my ribs. Well thats all I know for now. Hope that ya'll had a good day & hope to hear from you soon.
Janet
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Old 10-21-2009, 07:24 PM #69
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Post just an update

Hi everyone,
I saw my doctor yesterday & she ordered a bone scan for my ribs & its scheduled for friday. She also said that she was going to submit a request to my insurance company for the reclast injection for my osteroporis (sp). That way I wouldnt have to worry about taking any oral meds for it.
I hope to find out soon whether or not that can be done. Im really not looking forward to the bone scan---Ive had so many of them for the rsd years ago & for my newest bout with it. Its just hard to ride in the car & to get onto that small table that you have to be on. It will probably be late afternoon on friday before I will be back home again but if I find out anything I will let ya'll know.

Hope that ya'll had a good day & that it was good weather.
Hope to hear from you soon.
Janet
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Old 10-22-2009, 08:33 AM #70
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Quote:
Originally Posted by dreambeliever128 View Post
Ocelyn, you were talking about Drs. checking out other Drs. to see which might be the best for us, I don't believe they would know who is the best no matter how long they talked to them. It's up to us to find that right Dr. that will do what we need done for us. From what I have seen on here, it's sure usually not the first one we see either.
Yes, ultimately it is up to us to choose the right doctor. That is an art that can't be described. A good fit just happens sometimes.

But we sometimes need direction. After 23 years, I still have not found a Milwaukee-area doctor who really knows about RSD. I would appreciate help from the many doctors I have seen over the years.

I currently have an issue with my left foot that I do not think is RSD-caused, yet the RSD must be considered in any treatment options. I would like to know who I should see. I have not been able to get my doctors to make a suggestion.

Fortunately, I have a few ideas of my own, and I am going for a second opinion next Monday.

Mike
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