Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-16-2009, 07:31 PM #1
tiredofpain07 tiredofpain07 is offline
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tiredofpain07 tiredofpain07 is offline
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Join Date: May 2009
Location: Crossville, Tn
Posts: 56
15 yr Member
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Hi Ada,
Its good to know that Im not the only one that isnt "normal". lol lol Its good to be not normal, if you know what I mean.

I had my gall bladder out years ago also, all I know is that the ribs hurt & they arent getting any better. Its been over 2 months since they first started to hurt.

It helps that the rain has stopped---atleast for now. That definitely doesnt help the pain---as you well know. They said on the news last night ( I think) that out of the last 200 & some odd days that it has rained every other day & that there was only 5 days that we've not had any rain at all. YUCK!!! This is supposed to be the "driest" month for us, sure hope that it drys soon.

I hope that I get a good doctor soon too. I talked to my nurse case manager yesterday on the phone & told her that Carrie is trying to get me into her pain clinic, but I also gave her a name of another doctor that I found on the internet. Just as a "backup" & she said that she tried calling the doc but they are closed until monday.

I dont know if anything would get across to them how bad I hurt on a daily basis. Ive printed out different things that Ive found about pain & it doesnt register to them at all.
I truly thought that me telling them---not that they havent seen me this way for over 2 years that Ive not been able to do anything, that it would get through their heads that when I said that I wanted to get the mail that it would work. I mean who see you going to it & still gets your mail. He (b-i-l) said the other day that because it was "cold" that he didnt think that I wanted to go down there. Its like they are the "inspectors" of what we get. They even went as far as telling the "ups" drivers to deliver our packages to them---but I took care of that today. Im really trying to not to be difficult about the whole thing but it gets to a point that enough is enough. I really dont understand why they feel the need to see everything that we get. Maybe one day they will surprise me & leave the mail for us to get. Sure do hope so anyway.

Are you having warm weather? Like I said hubby has a fire going---its down right chilly here. BRRRRR!!!!

Hope to hear from you soon.
Janet



Quote:
Originally Posted by dreambeliever128 View Post
I have been told that I'm not normal also. I had a wonderful PA for the first 5 years of my medical issues and he told me that I would make a great College study.

As far as the ribs, I have pain in my right rib area. I have been told it was RSD and scar tissue from having my gall bladder removed and from having shingles years ago.

I don't think anyone gets the gist of how much pain we are in. I was just telling Diana that. I don't think the pain we deal with is explainable to the extent we need it to be somehow. If that makes any sense.

I hope that you start feeling better and that you get to see a good Dr. here soon to help you through this. It's sure not something we can seem to get through with Advil like your family is thinking.

Maybe you could let them read some of what we all write on here and it might help them understand.

Ada
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Old 10-19-2009, 07:19 PM #2
tiredofpain07 tiredofpain07 is offline
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tiredofpain07 tiredofpain07 is offline
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Hi everyone,
Just wanted to update you on one of the pain doctors that I was hoping to see. I found out today that he only deals with workers comp---so that definitely leaves me out.
I did find out that according to my nurse case manager there is another part of the insurance company ( I think) that will help me find a different PM doctor. She was sending them an email while we were on the phone this afternoon & she told me that they would be calling me back in anywhere from 24-48 hours. I told her to be sure to include the one that Im seeing now as someone that I dont want to see. Im really hoping that together we can find someone to treat me & who knows a little bit about what Ive got. Sure do hope so anyway. I will let you know when I hear something. Sure do hope that its good news for a change. I did find out today that I cant get a regular mattress for my hospital bed, so Im stuck on the spring one that I have until I can come up with the money to buy something on my own. Im still waiting for disability to do something. I dont know what they are waiting for to be honest with you because I checked their website & what I have is an automatic according to what they have on their site for me to get disability. I need that money badly.
Sure has been cold here--we were at 27.5 this morning & tomorrow is supposed to be close to that---but its supposed to warm up after about 10:00. Have a appointment with my PCP tomorrow afternoon---for my ribs. Well thats all I know for now. Hope that ya'll had a good day & hope to hear from you soon.
Janet
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Old 10-21-2009, 07:24 PM #3
tiredofpain07 tiredofpain07 is offline
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tiredofpain07 tiredofpain07 is offline
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Hi everyone,
I saw my doctor yesterday & she ordered a bone scan for my ribs & its scheduled for friday. She also said that she was going to submit a request to my insurance company for the reclast injection for my osteroporis (sp). That way I wouldnt have to worry about taking any oral meds for it.
I hope to find out soon whether or not that can be done. Im really not looking forward to the bone scan---Ive had so many of them for the rsd years ago & for my newest bout with it. Its just hard to ride in the car & to get onto that small table that you have to be on. It will probably be late afternoon on friday before I will be back home again but if I find out anything I will let ya'll know.

Hope that ya'll had a good day & that it was good weather.
Hope to hear from you soon.
Janet
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