Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-01-2009, 04:17 PM #1
loretta loretta is offline
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Join Date: Feb 2007
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loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Originally Posted by tiredofpain07 View Post
Hi everyone,
I don't know about anyone else here, but I'm wondering if your doctor tries to force something on you because he/she wants to fatten their wallet. It doesn't seem to matter what the patient wants or what's in their (the patients) best interest---it only seems to matter what the doctor wants. Like they are the one thats living with the pain that we as crps patients or rsd or for that matter anyone that lives with chronic pain.
I just wish I knew why they "think" that they know what is best for us, or they just "know" that this procedure will work---they do everything but guarntee it--which they can't do that or Im sure that they would be being sued every other day.
I've had so many "quacks" over the past 7 years that I could probably write a book about them---the only thing in my favor is that I have most of the test results in a folder in my file cabinet, so it wouldn't be as though I was lying or mis-representing the facts in anyway.
If they believed so much in what they are doing then why do you have to sign a release form---not holding them responsible for anything that might go wrong??
I was just curious as to what ya'll are going thru some of the same stuff that I'm being forced to? I would love to know your opinion on this.
Thanks in advance for your comments.
Janet
Hi Janet,
I'm sorry you are having disappointment and frustrations with various Drs. you have had. A lot of us have had several Drs. before getting one we trust and is knowledgable about RSD.It was 9 years for me and found a jewel 5 years ago in the yellow pages. I was even misdiagnosed with RA. The R. arthritis tests were even negative. I never went back. I went to a sports injury orthopedic group and was diagnosed in 1 minute backed up with positive tests. I went out of state, but came back and found some good Drs. and after therapy went into remission. I've refused certain treatments after researching, it's our body and right.
Read and Research! before you have any procedure. RSDSA is a wonderful organization to learn a lot of information. I went to their annual meeting this spring, here in Arizona. They have a place to put in your zip code and you get back a name and phone number of group support leader closest to you. Going to local support meeting can be very upbuilding and informative of local Drs. Also rsdrx.com is a great place of information from a retired Dr. in Florida. Under Puzzles List is 140 questions patients have asked and Dr. Hooshmands response. It is VERY good.
Of course there is a lot of warm caring friends here and are always here for you. Lots of years of experience and happy to share coping skills. I'm so sorry your wife and YOU have been thru so much. Your support of her must make her heart warm with gratefulness.
I hope some of this has helped. Take care, loretta
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tiredofpain07 (10-01-2009)
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