Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-19-2009, 10:30 AM #15
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
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Thank you all so much again for the support, I really appreciate it! It is hard trying to balance the RSD as well as school but somehow, i've got to try an as I will have this for life probably unfortunatley!

I had my parent briefing at College the other night where they told all of our parents how we have been getting on. It wasn't really for indiviual children so the teachers didn't talk to us all seperately but it was interesting and they said they were happy with the work we were all producing so that's good!

We went to a Care Home today which was really good. The teachers wanted us to go so we know what to expect with placements. We learnt a lot from it that we didn't know and even got to talk to the old people and got to play a game of bingo with them! The lady that I was working with got a full house and she was so sweet saying that I could have the prize as I was marking it all off for her! When we had to go, they were all thanking us for coming and saying they wanted us to come again. I think they liked it as they don't see many people that much so it was a nice little treat for them!

We got all of the details today for the House Of Commons meeting which is next Tuesday. It'll last 2 and a half hours and our local MP is coming to talk to us also. I'm hoping that we'll be able to get school's/colleges etc to realise how hard it is doing edication with a chronic pain condition and get them to offer more help. Hopefully Gordon Brown will be there too so that will be good!

I'll let you all know how the meeting goes next week!

Thanks again for the continued support and i'll keep you all posted!
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