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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Doctors?

View Poll Results: What kind of doctors are you seeing?
Pain Management 18 64.29%
Pain Management
18 64.29%
Neurologist 13 46.43%
Neurologist
13 46.43%
Internal Medicine 9 32.14%
Internal Medicine
9 32.14%
General/Family Practioner 13 46.43%
General/Family Practioner
13 46.43%
Multiple Choice Poll. Voters: 28. You may not vote on this poll

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Old 09-28-2009, 09:26 PM #1
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Poll Doctors?
I was wondering what type of doctor's everyone sees??

(I finally have insurance so I am able to go to a doctor)


Abbie
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Old 09-28-2009, 11:41 PM #2
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my pm is a neurosurgeon and anesthia dr.. i see a reg neuro for my cluster headaches and internal med for everything else

carrie
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




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Old 09-28-2009, 11:58 PM #3
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Quote:
Originally Posted by angelrsd View Post
my pm is a neurosurgeon and anesthia dr.. i see a reg neuro for my cluster headaches and internal med for everything else

carrie
My neurologist is also a psychiatrist and a Pharmacologist. I also see an internist and a bio-identical hormone DR. loretta
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Old 09-29-2009, 04:39 PM #4
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Thank you!!

I'm still trying to figure out what kind of doctors I should get referals to...
I want a well rounded medical team....

I appreciate any doctor information I can get....

Abbie
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Old 09-29-2009, 06:59 PM #5
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Right on Abbie!!!
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Old 09-29-2009, 08:26 PM #6
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OK,
I generally, look in the mirror,
and,
tell myself how sick I am.

Which doctor should I speak to?

Truly now,
My Neurologist,
Dr. Knobler (Ft. Washington, PA)
Is the FINEST doctor I have EVER Been Seen By!

I have such a good relationship with him, that I cannot speak of it.
Truly.

I have with Him, and his Wife and Staff, what EVERY patient should have!

I'm not bragging, or putting anyone on.

This relationship, IS something that Everyone,
Needs to Work towards!
I've been through TWO UnAvailable Wives through. (My Wives).
He and His Wife, have been completely TRUE!
To Me!

So, if anyone, in SE PA, can get closer, to a "Perfect"
relationship....
I,
want to Know about it!

Thanks,

Pete
ASB
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Old 09-30-2009, 07:39 PM #7
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i have appointments for all 4 that are listed this month plus a urologist appt and colonscopy. busy month again.
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Old 09-30-2009, 07:46 PM #8
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whats hurting most?see that dr. first. i would choose an internist over general/family bcuz our autoimmune system is compromised and the meds we are on screws up the gastro systems.

as far as a neuro or pain management, i would choose whoever is considered best in your area.

Mike



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Originally Posted by Abasaki View Post
I was wondering what type of doctor's everyone sees??

(I finally have insurance so I am able to go to a doctor)


Abbie
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Old 10-05-2009, 04:16 AM #9
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Default Type of Physician
Quote:
Originally Posted by Abasaki View Post
I was wondering what type of doctor's everyone sees??

(I finally have insurance so I am able to go to a doctor)


Abbie
I have found that an Anesthesiologist that has a Sub-Specialty in Pain Management is the most knowledgeable in RSD. I've seen others - almost every specialty out there that deals with Nerve Disorders - but Anesthesiology is best for me.
Good Luck!
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Old 10-05-2009, 09:52 AM #10
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I see a Pain Management Doctor, Neurologist, Physical Therapist, Psychologist and my GP.

My Pain Management Doctor in my opinion, has been the best doctor I have seen for my RSD. He has helped me a lot and not given up on me when most others did. Instead, he gave me medications and treatments to try that might help ... unfortunately did but he is still there for me even to this day!

My PTs work closely with my PM Doctor and they give me exercises to try and help with the RSD and Dystonia. I see them fortnightly most of the time now (I used to see them weekly but they thought I needed a break for a bit).

My Neurologist has been really great too. He doesn't know too much about RSD but deals with the Dystonia and Myoclonic Spasms that I have. I don't see him that much (every 3 months) but I know he is always there for me and is constantly on the look out for things that might help me.

I don't see my Psychologist that much as she is in London which is 3 hours from us (she was the only Psychologist I saw that I liked) but I have her email address and know I can contact her whenever I need to. She gave me lots of breathing techniques etc to try and help me 'deal' with the pain.

My GP doesn't know that much about RSD other than what we have told him so I only usually see him for referals to other Doctors but he is really interested in learning more about RSD.

I hope you find a good Doctor for you, Abbie! Don't give up until you find one you are comfortable with - thats critical!

Alison
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