Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-19-2009, 09:08 AM #16
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Location: Belgium, Europe
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Dew,

Time is of the essence when treating RSD, that's true, 3 months to be able to maybe still beat it without it becoming for ever disabling or chronic, but that doesn't mean there aren't ANY treatment options at all for patients who have been diagnosed too late. That doesn't mean you don't deserve care! I was diagnosed and treated for the first time when I had RSD for 2 years and 7 months, or 31 months! The doctors tried EVERYTHING. They didn't just say, it's too late anyway: buhbye and now go rot in hell. I don't get the reluctance to treat you or to keep looking for good treatment options at all! It's as if they have written you off and that's a COMPLETE DISGRACE!!! You have to keep trying, doctors can't give up. I mean who here is happy or content being an RSD patient? No one! We are ALL on the lookout for better options!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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