Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-16-2009, 07:09 PM #1
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Default Pain and pink eye.

I was suppose to go to the Dr. Monday but I called down and told the girls that I needed to get in today and they called me back and said can you be here in 15 minutes. That's my Dr. for you. He's Superman to me.

Anyway, my pelvic pain was through the roof. I had taken Methadone and put on a Lidocaine patch on my left hip/pelvic area and then put a heating pad on the area and burned my leg. So when I went in, I had a burn on my leg. I didn't notice it due to the pelvic pain. I think they could sat me on fire when I'm in this much pain and I wouldn't notice anything but the RSD.

I also have Pink Eye. I woke up this morning with a red, watery eye so he gave me a script for eyedrops.

Anyway, when I was talking to my Dr. I asked him about me going back on Methadone full time. Taking it 3 times a day like I was doing months ago to get it in my system so that I can keep my pain level down. He said he'd rather I didn't. The reason being, I have Motility related Dypsepsia, Metabolic Syndrome, GERD, and PUD. He thinks my system will start shutting down again even though I'm on Metforim to keep it working right. He didn't tell me no and I do have plenty of Methadone on hand so it's not as if he is saying a definate no. He lets me use my own judgement, he trusts me. When I'm in this much pain though, nobody should trust me.

I feel like I am stuck in a mess. If I can't take pain meds of any kind what do I do?

He did give me lidocaine injections, inside and out. It usually helps but with this damn weather change, as I told him, I don't know if it will help right now.

When I get in this much pain, I start thinking man, they shoot horses don't they. I also think, just call in Dr. Korvorkian. I get very suicidal because of the pain.

I feel like I am in better shape then a lot of you but when I get like this, I just go nuts. I even worry about not being able to get in to see my Dr. to get the shots I need or the meds I need even though I have plenty of meds on hand and he is just a phone call away. Do any of you feel this way when you are at your worst.

Even though my Methadone helps me more then anything I am on, someone said it right in one of their post that when our pain levels are at their highest, nothing works for us.

This is me venting guys. Thanks for all of you being there. I am glad we all have each other.

Ada
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AintSoBad (10-16-2009)

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Old 10-16-2009, 08:17 PM #2
AintSoBad AintSoBad is offline
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Ada,
You know, I'm on your side, and you seem to have a fine doctor!

My doctor tells me, I must keep myself in "breakthrough Pain" meds.
I.e., when I feel better, I save a pill, when I feel worse, I use a pill, or half.
I'm talking about methadone...

He may be wanting to put the "brakes on" you.
But, if you feel that you need it badly.... then you must ask again!

You said, he trusts you, / you trust him. yes?
That's perfect!

This weather is just the wolf's ars!
Everybody, Everywhere is at their Wit's end! I am, and so is everyone I know!
(Even people I know who have "Nothing wrong" are Scrwd.! I don't know why.)

Now, Ada,
You can't get suicidal, you jumped to my aid, and now it's my turn, to jump to yours!
You would make so many of us so sad, if you did anything foolish, and, you have so much experience, to teach so many of us, what to do!
I know, as a 2.6 year veteran of this BS, that you have LOTS of insight For all of us!

Please ,don't fail us now!

Yea, this time of year Sux.
Stick with us, OK?
Help us through it.
I've been with it for a long time.
I can't do it myself.
Please, PM me your Phone #?

I know, it's getting more, and more difficult...
Yet, I also know, that we need to keep more faith,
that we'll get through this.....

If we have good Doctors, they keep our pain managed,
and the "S" word, out of our vocabulary!
Please,
Let your doctor do that for you?
Let's speak, OK?

Many people, including myself, find support, in you, and we Love you!

I'd give my life, so that you and anyone here could be pain free!
Sometimes, it's like wt/heck do we got to lose?

Everything!
Think about it!

Everything that God gave us to Give!!

Let's Give, Ada!

I'll be by your side!

OK?

All my love!

Pete
asb
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Old 10-16-2009, 08:24 PM #3
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Default Get Better Soon!

Ada,
I'm sorry that you are going through all this pain! I think all of us have felt those very same feelings as you have expressed here tonight. I do hope you get some relief soon! I really wish I had answers, but I don't. I just take life minute by minute.
I love you! I'll give you a ring...Hugs Di
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Old 10-16-2009, 08:26 PM #4
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Dear Ada,

Why not up your meds until this flare passes? If you have something that works and you can take the edge off if I were you I would use it for a while until you are better able to manage. Just do it. Get some much needed rest and take a break from the pain. If you use the Methadone make sure you take your Metforim and drink a lot of fluids.

Please keep in touch with us and let us know how you are doing. We all care very, very much about you.

XOXOXO Sandy
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Old 10-16-2009, 08:46 PM #5
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Ada
Sorry to hear,,,,your not alone,I think everyone on this board had contemplated suicide because of rsd,,, I know i have,,it makes you angry,depressed,agitated,resentfull,,ect,,ect,,But God has a way of surcombing us. And i think we all have [exspecially when were in really bad pain] are worried about our stash going low or fear of the dr ,saying no more,,,its like a combination of addiction and affliction,,,,I dont want the meds,,but i dont want the pain,,and of course the body gets used to a certain med ,or amount,,and the pain is the same when doing that amount of medication when your tolerance level goes up,,you would have the same exact pain,if you were clean,,,,,,,so ,,you either add more of the med or stack on top of it another,,or swap out something the body isnt used to yet,,,,,,,either way,its a merry go round from Hell......exercise when you can,,find something you enjoy,,and like pete said,pm me your # if you want to chat....I do [as others here ],feel your pain,your in my prayers,,,,,,,,,,,bobber
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