Hi TMullen,

My daughter is 16 years old and has RSD. I joined neurotalks for support myself. Although I do not have any idea of how much pain you feel, I do know what it is doing to your life. What I can tell you as a mom of a 16 year old girl with RSD, is that you have to take every day one day at a time. I hope that you have a supportive family, mom or dad that can help you through this.

My daughter went through Ketamine infusions in July, I believe they have helped, I know that she is going to have to have boosters in the near future. Do you have someone to talk to, meaning a professional, someone to help you cope.

I see that you went to the Childrens Hospital in Boston, my daughter went to the Cleveland Clinic Childrens Pain Rehab program. Yes, as she refers to it as a word I can not use here, but, she has a different outlook about the outcome. yes it was awful and painful, but it did teach her coping techniques, there has to be something that you learned there that you can still use to help you cope. Have you tried pool therapy, I know the only thing that Dr. Kirkpatrick feels that all RSD patients should only be doing warm pool therapy, as not to re-injure or to injure yourself again. Where do you live? Are you going to school?

I am so sorry that you are where you are right now. I know that there are a lot of things that parents really don't understand, like one day of feeling so good, hanging out with friends and within an hour of being home, you have so much pain and are so tired. I do want to tell you that there are several teen boards that you may want to also try. I hope Ali12 (Alison) will see your post. She is 14 years old and must be close to 15 by now...She is very versed and a wonderful young lady. I think that she can relate to you and what you are going through. Try to find her under members and PM her ( send her a private message, she is wonderful, I do have to say, she has given me a better understanding from a teenagers perspective.

Keep your chin up sweety, and know that you do have a place to come and vent. But, remember I am a parent of a child just like you, your parents are a great place to start too, they really do understand, and if they don't we really want to. So talk to them and let them know how you feel, they are there for you too.

As Loretta says "I am sending you soft hugs!" And a hope for a better today, with less pain.

Much love and hugs ,

Sandy