I tried lyrica.... I was running into walls I was so tired and dizzy. My docs took me off it right away. I know it needs to build up in the system for awhile to work and the side effects to lessen (sometimes up to a month or more) but if it doesn't work for you don't give up hope there are tons of other things. Also know that for some it is finding the right combo of drugs, and for others nothing works but narcs (like me). But there are times when I don't take anything. If you have only been dx for a short time now is the time to be really proactive (and active). Your body will tell you not to move and to rest but that is the worst thing you can do. I did that and it took me months to build up to any kind of functional level, and the longer you go the worst it gets! Good luck with the lyrica and I hope this finds you at a low pain day!
Jennelle

I have been on Lyrica for almost 3 years now. Side effects have diminished somewhat EXCEPT just recently, my ankles started to swell like never before. I am on 230 mg twice a day, and it seems that when I took 100 mg 4 times per day I did not have this swelling, even though it is essentially the same dose. has anyone else observed this?

Did anyone else feel as though they had been dosed on acid for two days on Lyrica? Had to stop it because I went down the rabbit hole-full psychedlic experience. Is Neurontin any easier?

Thank you!

MDH

I'd talk to your doctor if you are experiencing those kinds of side-effects. I've never even heard of side-effects like these for Lyrica.

Are you being serious?

I have not personally taken Lyrica, but I know it is supposed to be pretty similiar type of medication. One thing I do know, is that the side effects are virtually the same....same with Seroquel and a ton of other drugs that I could liist. If you cannot tolerate the side effects, and you feel it interferes too much with your day time activities, then, you should talk to your doc. Unfortunately, lost of these meds do make you very tired.

Hi Monarynko,
I was on Lyrica for several months 400mg. Had been on 3200 mg neurotin for a long time. I found Lyrica helped more with pain level, but also had edema and weight gain. I had always been thin until these two drugs. I felt the side effects of weight gain were not good for my health and Dr. let me gradually go off. I was afraid I would get the electric jolts, jerks, spasms, back again, but didn't. Had just a couple small issues the past year. I last 30 lbs right away, but gained some back on another drug. I'm grateful for not getting the side effects back. I have full body -14 years. I'm on healthy diet and building my immune system up and exercising -building stamina up. Getting some of my life back. Do have some flares, but have a great Dr. managing my pain level. It's tough. Hope the best for you. This is full of caring compassionate friends, always willing to support. I thank God for their kindness and my family doing so much as my health declined. Take care, loretta soft hugs

Well, maybe without the high and without anything psychedelic. I was just bombed. confused. dazed. discombobulated. and vaguely light headed. did I say confused?

I'm afraid of neurontin but I take gabapentin and that's the same thing. It is problematic when you start it because it will probably make you extremely sleepy. ...sick to your stomach groggy. I started on 300mg and took one the first day and then two the next and finally three. After a few days the sleepiness went away entirely. When I first got the RSD this stuff was almost 100% effective at suppressing the everyday sort of pain. I was still a mess but as long as I avoided my triggers I experienced almost no pain.

I went into a partial emission and was able to wean myself off of it. It was very difficult not because it was addictive but because the pain would flare when I didn't take it. But I did get off. I noticed a significant change when I got off. I often noticed very unusual coincidences when not taking the neurontin. This fades while on the medication. It might be some sort of obsession that makes me notice them or something else entirely. If it's ever possible the gabapentin will go.

Ask your docotr if you can try Neurontin. Lyrica made me nuts, but I tolerate Neurontin very well and am only really drowsy in the morning until about 8 am. I take 300mg in the morning, 300 in the afternoon, and 400 at bedtime. I also take Cymbalta and have Ultram, Darvocet, and Hydrocodone 10/325 for breakthrough pain. Lyrica and Cymbalta are both Gabapentin, but Lyrica is absorbed by the body differently. My doctor told me to expect the same side effects with Neurontin as with Lyrica, but I did NOT have them. Good luck. I really hope you find something you can tolerate so you don't have to choose between pain or a coma.