Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-24-2009, 02:51 AM #9
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Sandel Sandel is offline
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Join Date: Oct 2006
Location: Western Canada
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Sandel Sandel is offline
Member
Sandel's Avatar
 
Join Date: Oct 2006
Location: Western Canada
Posts: 844
15 yr Member
Default Our symptoms come before the signs they can see..

First off let me say that there is medication that is sometimes taken in tandem with an antidepressant that can cause alot of redness burning stinging pain and heat... and darn it all can I remember the name.. begins with a T? I will post back when I remember it..

However:
I wasn't believed either, thought I was going crazy bugs in my skin, sunburns..
I was looking back over my WCB notes today and I noticed that I first reported the full range of spread symptoms throughout my whole body in early November of 2005 and I had only had my injury the end of May of in that same year..
Thats less than SIX MONTHS!

Why is the CRPS spreading?
What is diffrent for those of you who have no spread?
What invasive treatments have we had?

ICE?
TOO AGRESSIVE PT?
SURGERY?
CASTING/SPLINTING?

~~~~~~~~~~~~~~
I remember the drug I think it is Thalomine? it makes you turn real hot if you put your hands in hot water too, we had to bring a friend out side and hose him down with a garden hose after he acidentaly doubled up on his dosage one day.. he turned red like a beet and got real hot... he said he was burning up inside on fire.. but he later said that normaly he just felt an ocasional burn here and there like a sunburn.
So well I checked my meds when my burning started let me tell ya.

Anyway I am sory you are going through this Wolf, and all of you that are just going through this now.. Be strong and believe in yourselves, I thought I was going nuts and my doctors were willing to help me think that was so..

Don't let them make you doubt yourself.. write down what you are feeling as it is happening.. write a journal and bring it into your doctors apointments.
That is the only way my doctors finaly saw the regularity of it all.. and finaly the signs of spread started showing too.. but my journal was what made all the diffrence in the world when it came to doctors seeing the real picture.

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