Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-24-2009, 01:35 PM #11
Mme. De Huse Mme. De Huse is offline
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Join Date: Jul 2009
Posts: 6
15 yr Member
Mme. De Huse Mme. De Huse is offline
Junior Member
 
Join Date: Jul 2009
Posts: 6
15 yr Member
Default New here, as well

Thank you all- deeply- for this site. Amazing how doctors can make you feel crazy (when you're not), and the wise words of others help a great deal.

Have had RSD/CRPS 1 for about 18 months, following a cervical fusion. Had two stellate ganglion blocks, the last of which the doctor "missed" and injected contrast dye into my bloodstream. Have been ill ever since, and getting kidneys/liver, etc., checked out on Monday.

I, too, have had a negative rxn to Lyrica- my pain (left side, arm, brachial plexus, hand, etc) is so bad I'm now taking dilaudid- and it's saving me from madness. Does anyone have anything up their sleeve(s) to help with the therapy? Had acupuncture for 5 months, PT, etc. Was a classically trained ballet dancer only a few years ago- now I can't eat with my left hand (dominant one). Looking to find courage in this and hoping not for sympathy or pity, as we are all suffering, but SOMETHING- doing orgo diet, vitamins, herbs, all of it. Am I missing anything?
Thank you and bless you all- my heart beats for each of you
MDH
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