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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-24-2009, 01:35 PM #11
Mme. De Huse Mme. De Huse is offline
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Mme. De Huse Mme. De Huse is offline
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Default New here, as well
Thank you all- deeply- for this site. Amazing how doctors can make you feel crazy (when you're not), and the wise words of others help a great deal.

Have had RSD/CRPS 1 for about 18 months, following a cervical fusion. Had two stellate ganglion blocks, the last of which the doctor "missed" and injected contrast dye into my bloodstream. Have been ill ever since, and getting kidneys/liver, etc., checked out on Monday.

I, too, have had a negative rxn to Lyrica- my pain (left side, arm, brachial plexus, hand, etc) is so bad I'm now taking dilaudid- and it's saving me from madness. Does anyone have anything up their sleeve(s) to help with the therapy? Had acupuncture for 5 months, PT, etc. Was a classically trained ballet dancer only a few years ago- now I can't eat with my left hand (dominant one). Looking to find courage in this and hoping not for sympathy or pity, as we are all suffering, but SOMETHING- doing orgo diet, vitamins, herbs, all of it. Am I missing anything?
Thank you and bless you all- my heart beats for each of you
MDH
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Old 10-30-2009, 10:53 PM #12
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Sandel Sandel is offline
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Later in the day I feel like I am being bitten by fire ants in areas that I do not relieve fast enouph by moving the limb if it is touching something.

woah thats my brain tonight.. Big Welcome to NT both of you.

Sandra
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Old 11-01-2009, 09:44 AM #13
keep smilin keep smilin is offline
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Quote:
Originally Posted by Kbanister View Post
Hi all.... cool site. Glad I found it.

Here's the deal with me, hopefully someone can relate because, in all honestly, I don't want to be alone in this hell that has become my life. I itch from head to toe. It gets really bad in the afternoon. I've been to four doctors. The one today gave me head lice treatment. She didn't even look at my head, and I DO NOT have lice for crying out loud. The other two docs did cbc and blood panels and say I'm B12 deficient, which I'm learning is related to nerves.

The whole thing started a few months ago, when I woke up at 1 am with itching so intense on my feet it was straight painful. Then it went away and then a few months later (about six weeks ago) came back on my arms and since then spread to my entire body. The itching usually starts around noon. It's so hard to finish the work day cause all I want to do is go home and pass out on antihystiminees. My quality of life is shot and I'm basically ready to take a can of gas, pour it all over me, and light a match. For reals, this is such hell. The itch is so bad. I feel like I'm getting poked with little sewing needles, all over my body.

Does this ring any bells with anybody? Please dear god, tell me someone out there has this and has a solution for me, otherwise I am going to do the unthinkable, because I cannot live my life this way.

Please help.
KAren..

I think many here have shared some very informative suggestions for you to move on.. quickly.. I must add.. plz.. get to a good Dr. who knows about RSD in order to either confirm or not confirm RSD your case AND if they feel you do have RSD... first of all, I am sorry for that diagnosis but really you need to move quickly for intervention because the earlier you act on it the best results you can achieve in working with this illness wehtr it be pT or medicines for pain or further help as in blocks etc....
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