Hello my name is flippnout. I have been on these boards for several years I think.....well we know how that goes right.

I have RSD and TOS, man I feel like this is AA nope never had a drinking problem had a friend who did, so I went with him well drove him there. So I have these conditions and I refuse to get down I have been there and feel the negative thoughts and lost feelings make it worse sure I have the pain yet I just want half the pain thank you LOL. I do have my time but I have got to learne to beat it down, we being A types should know how to control this thing, that is why we are A types right.

So I have this WC thing going and SSDI going wich I'm sure others do to, my doc is on my side so thank you docs! I have got to come to terms of finding a new life what to do now! with my life I can no longer work but I can do something like to volunteer so I have to think, I anc start doing ART again paintings wich would be good therapy and I must start to walk more, darn lyrica is making me gain wieght...

I live in the center of the USA and I like it here I wish I knew others here with this,but not many I guess I am treated at a teaching hospital I'm sure one day I will meet some one for talking. Till then I will be here if you dont mind...

I was in a serious car crash in Jan. 1996 with significant damage to my left arm +++.

I haven't had any implants, but everything else that has been tried hasn't worked.

It is hard to describe to others the stunning nature of this pain.

got rsd july 5, 1996 from my third hip replacement surgery.
i was 44 years old.
DX by a rehab specialist April 1997, 9 month later.
joan

This link goes to the thread -

"when did you get your initial rsd/crps dx" http://neurotalk.psychcentral.com/sh...ad.php?t=26282

It ties in with the introductions thread and will make it easy to find.

Hi everyone,

My wife had a car crash and had to undergo minor surgery on her left hand, due to a broken bone.

That was 22 days ago.

After having heard from 4 different doctors that the swelling and the pain would go away, a fifth doctor diagnosed her with CRPS.

Being diagnosed is both scary and relieving. Relieving because we read a lot about it in the last 2 days and know what are the next steps. Scary because the outcome is unknown.

One first question would be: what is an early or late diagnosis? She will start OT 23 days after the accident.

What we are most afraid of are the crippling effects of CRPS. Her fingers are already stiff.

Please, if you have been through that, give us a light. Thank you.

By the way, what an year... last june we both were diagnosed with HADD... but we are even proud of being so hyperactive...

Well im a high school student and i developed RSD last year. I had a a ski accident and i had gotten a fracture . I have went through numerous doctors and have gotten no results . About a month later i was diagnosed with RSD. Nothing helps it at all even vicodin etc . I honestly feel as if no one but myself has any clue how painful and hard this is to deal with. People in school always talk about it but they have no idea what they are talking about. This has effected my life in a major way i cant play the sports that i love anymore and its tough. Just as i feel like it might get better it dosent and i think im starting to have a problem with my knee HELP ME Any advice?

To Accidentwalking here-high school student.
My name is loretta,and I'm so sorry you have RSD. It's important that you understand the many symptons of RSD. The more you know and understand what is happening to you will lessen your fear and get control of your health.
Many Drs. really don't have a lot of knowledge about RSD and how to treat it.
People are different in their reaction to medications and treatment. You are in the best place to get procedures that can put you in remission. If you get treatment in the first 6 months you have a good change to get blocks that stop the cycle of pain signals going to your brain. I did not get an accurate diagnosis for maybe 3 years......then the pain signals become independent pain signals. Do a lot of research before accepting a form of treatment.
Ask you Dr. how many rsd patients he has treated. If you decide to get a block, it's done by an anethesiologist. Ask how many blocks he/she has done...I'm so sorry you have this monster of a disorder. Your right, it's difficult for anyone to really understand, even family. That's why this forum'is so wonderful. There are so many wonderful people, young ones in school and college. The people here have a tremendous amount of collective knowledge..Depression goes along with rsd, because the disorder affects the limbic part of your brain that controls emotions. It affects your blood pressure both high and low, your circulation, anti-depressant meds are effective for nerve pain. I am on two different ones. Also anti-seizure meds are effect on nerve pain. Neurotin has been used for years. I was on it for a long time, but I've switched to Lyrica and it is more effective. Besides Vicodin, I also take an anti-anxiety med. Also a sleeping pill occassionally. Two different blood pressure meds. I didn't have blood pressure issues before rsd. My daughter and I snow skied, water skied, played tennis (really we were fanatics) worked out together at a club. It is such a loss to loose being able to do all that. It is life changing. I went thru a serious grieving process. I have full body rsd now for 12 years. Mine started the day after surgery-I had frozen shoulder. I went thru about 100 physical treatments to get the range of motion back. A few months later it moved to the other shoulder- more therapy. Then my left hand was injured-a nerve pull while water skiing. more therapy so painful. use of my fingers is limited. it's like a frozen claw. then moved to other hand then moved down to both feel and lets. About 6% get full body. Where do you have rsd. what treatment plan do you have? Another site that answers many questions is rsdrx.com The puzzle part is very good. Having the right Dr. is so very important. Mine is just wonderful.He is a neurologist, phmacologist, and a phyciatrist. Please let
us know how you are doing. You can share your true feelings, it is such an adjustment in life and we can't do it by ourselves.Everyone here really cares.
Sincerely, loretta jewell from arizone.

Hi all,
I have had RSD for 10 years. Had minor knee surgery and BAM - RSD in the left knee, then leg, then onto the right knee and leg. I was out of work for 3 years...cou;ldnt walk, drive or anything else. Had to undergo PT to prepare for surgeries to rebuild both legs as everything had atrophied from the RSD. in 00 went back to work and have had flare ups since, usually managed by meds but when it gets real bad i get the blocks. had a block on 12/24 (merry christmas to me ) and will be having another on 1/22....thought I'd see what folks on line had to say and what they thought and felt about RSD....

For me, I make the most of what I have everyday and go to PT in the pool 2-3 times a week after work to keep my legs moving....taking cymbalta for the first time for the RSD....just increased from 30 to 60 and the sweats are slowly starting to subside. Have bumps on tongue from the dry mouth but hope they will go away soom....tried Lyrica - side effects were too much...used to take dylantin, baclofen and flexerill but had to change meds because my body got too used to them.
So thats my story - I am always interested in hearing others and would be happy to answer any questions folks new to this disorder may have....I have always considered myslef pretty lucky as my neurologist also has RSD so he can always relate to what I have to say and how I feel.
In good health to all,
Lisa

Hi all My name is Jo i was diagnosed with rsd in may of 2007. I started with a stress fracture that healed and the rsd set in. I had a breakdown with the diagnosis of this, but am much better. I am on cymbalta, and kepra for the nerve pain. I am without pain meds trying to this without .. In the process of finding a new pm one that doesnt have assistants in every corner lol. I had one lumbar block in august. I have five children ages 20,19,13,11, 6.. So far its been a long haul but we are managing much better. Hope to meet you all.

JoJo

My name is Stephanie. I was recently diagnosed with RDS, but I am in denial.
I was in a car accident in November. I was going straight through an interesection and the other driver turned left in front of me. He was unlicensed, uninsured and undocumented. Unfortunately, I only had a $15k uninsured motorist policy. My left arm was injured somehow in the accident. I dont remember what exactly happened to my arm, but it turns out that I only sustained soft tissue damage. My left hand has become increasingly more painful. It goes from extreme hot to extreme cold. On bad days, it turns a lovely shade of purple. It is constantly swollen and hurts all the time. I am seeing a neurologist and have been throught physical therapy. I am currently on Gabapentin, Naprosyn and Percocet. I keep thinking it is going to clear up on its own. I keep thinking i will wake up one day and it will be better. I struggle with accepting that RSD is the real problem. The neuro has ordered an MRI to find out if there is damage in my neck/spine. My neuro does not seem to be in any kind of hurry to help with the pain. In fact, he isnt even the one who prescribed the Percocet. I had to get that from my PCP. I guess I am just looking for some answers and explanations. Hopefully, I will find both here.