Hello, glad to to have found this forum. I've been reading the threads over the past few months and finally decided to join. I was diagnosed with CRPS in my right foot & ankle earlier this year. It's taking over my life and I hope to find some help and support here, and advice. I will post my story in a new thread.

Hi group. I've been lurking now and then--most of the time not wanting to think about my situation whenever I could avoid it. I was diagnosed nine years ago with RSD after breaking both bones in my forearm. It was excruciating for several months, however, with constant physical therapy, I was able to beat it. This time, when developing it immediately after simply twisting my ankle 18 months ago, I was convinced that I could once again beat it. I think I've done pretty well. I've worked hard. But I have to admit--it's not going away. It's incredibly miserable. I have always been such an active and happy person with my kids and now it pains me in so many ways that I just cannot do the things I used to do. I need to get a job, but after trying and failing once before, I'm really nervous. I dread a shopping trip I would have once loved. How can I work an 8-9 hour day when I can't make it through a few hours at home without wrapping my leg in heat or taking a nap?

I'd love to hear suggestions for making it work at work. What kind of jobs do you do? Doesn't the pain make you bite people's heads off? I have to admit I get really snippy by late afternoon!

I'd like to say I'm still determined not to let it beat me. I don't have a deformed foot. I work at it every day, wrapping it in heat, stretching my toes out, strengthening it. But the last few days have been rough and my attitude is slipping...

Welcome to Neuro Talk. If you have been lurking, you already know there are a great bunch of people here. I am sorry you have RSD. I don't have that but PN. The RSD group will support you. Just from what you said in your post, you are having pain issues. This keeps you from a job, and doing those things that you want to do. My own take on it would be to seek a few new doctors, that may think outside the box. Do any of your medications work so far? Do you have a pain specialist? I see a physiatrist, who has specialized in pain first, and then treats the "whole" person. This type of doctor may be able to help you. They are a bit different than an MD. or DO. It would be worth it to call around and see if you can find a physiatrist, and ask if they specialize in pain. I hope that you can find some relief, so that you have less pain filled life. It isn't fun, and it does push a person to the limits. I hope you get more help. Again Welcome to Neuro Talk. ginnie

Hi,

My name is Karla and I've been researching TBI the past several weeks with the new information that has been surfacing about football players having multiple concussions and symptoms developing years later.

I began retracing timeline on my concussions as a child and realized just a week ago that the three concussions I had were all within a year of each other, between the age of 9-10 yrs old. I've been suffering from depression, memory problems, blurry vision, and major mood swings.

I'm looking forward to learning more and am interested in knowing if it's worth my time & money to see a physician. From what I've read there isn't a whole lot that can be done; however, I'd be curious to know if the protein connected with Alzheimers could possibly be noted from a petscan.

Sincerely,

Karla

Hi Karla and welcome

You have posted this on our RSD?CRPS forum but it seems you need the TBI/PCS forum so I have made a copy of your post there for you.

here is the link so you can check for replies
http://neurotalk.psychcentral.com/sh...d.php?t=194185

Hi Karla,

Have you looked into cognitive rehabilitation? Like you said it is unlikely that you would fully be able to recovery due to the length of time between injury to now but, I have heard good results with cognitive retraining/rehab. There are even some "brain games" and vitamins that can really improve mental clarity & processing speed.

Good luck,
Tessa

Hello All,

I am very glad to have found this site. In December of 2012 was moving a power pallet jack at work. I tripped and hit the jack into reverse and pinned my foot between the jack and a loading dock. I suffered 17 broken bones, 5 crushed bones and did massive damage to my lisfranc joint. Foot was broke clean across into 3 pieces. my toes were displace 11 millimeters to the right of my foot. From the second the injury occurred my foot felt like it was burned to the bone.

I knew right away that the pain was not from my breaks but was from something else. I just didn't know what. I had surgery last January and they screwed my foot back together. Through all my treatments I kept telling the doctors I could understand if my foot hurt but I could not understand the burning. In June I found out that my first surgery did not take and that I would need to under go another surgery. They are going to fuse my foot from the ankle forward, try to replace my cuboid bone, fix my arch and try to reset my foot into its proper position. the new surgeon in passing said I had RSD.
At the time I gave it very little thought. Now I have started researching the CRPS. It was like a slap to the forehead. I now know why I have all these crazy things going on and no it is not in my head as some of my doctors suggested. I have now put together a awesome medical team and aggressively treating my CRPS. I am on Norco 7.5s (allowed 6 a day but try to keep it at 4) Fexerol 10mg 3 times a day, capsaicin cream and Clorazepate 7.5s 3 times a day.

I would recommend the Clorazepate to every one I go from 4 to 6 Norcos a day down to two when they put me on the Clorazepate. Here in is where I now I ask you all for some advise. If I have my next operation now I lose the last two months for my one year mark and thus greatly reduce the chance of remission. If I wait my foot could collapse,we are not sure how long it will hold together. Ad again if I wait and do go in remission surgery could put me right back to where I am. Also most likely doing surgery will stir up my CRSP worse.

I feel so stuck and do not know what route to take. My CRPS has been on the move lately also. It is now on my ankle and calf. When I was told about having it, it was only on a small portion of my foot.

Hi i am Mike 36 from NZ I am single after a divorce with my wife
which happened not long after i got crps it started with RSI in my elbow
and then spread from there i posted a poem in the poems thread it gives my story. I enjoy fishing and photography the too things i can still do on good days
I have read alot of the other poems awesome too read them it makes me feel i am not alone as i shed a tear writting this. I have bad depression which i am going to see about this week i think i had it before crps and its time to deal with it as i have learnt i have to deal with things so i can deal with the crps easier
Maybe bipolar which freaks me out like i dont already have enough to deal with with crps

anyway sorry got carried away there this is me i hope you let me in

Rock on Peace out
Mike the Kiwi.

Hello: I am a newbie to NeuroTalk. I was diagnosed with RSD two weeks ago, I have been disabled since 2005 due to an auto accident. I have been battling fibromyalgia, perephial neuropathy, arthritist, migraine headaches, IBS, and several damaged disc in my spine since the accident. I really would appreciate making new friends who understand what I am going through. I have a awesome family, they do their best trying to understand what I am going through, but as you all know, unless you walk in our shoes it is impossible to really understand our struggles. Thanks for being here.

Welcome to the group.