I think I'm in the right place...lol.
New member and had read my story(by someone else, one of the main members) She said everything I was going to say.
But I'm having strong body jerks and it's only when I'm lying down, resting or asleep. My arms have jerked so hard, they go all the up! Weird. Anyway, just looking for anyone who has this same problem. Going to a neurologist in the morning. I don't know what I have, just wanted to talk I guess.

Hey everyone! My name is Lindsay and I'm 23 years old and I'm a college student. I'm currently studying social work with a minor in psychology and will graduate with my Bachelor in Social Work next year in April. I plan to get my Masters and work as a medical social worker. I love to sing, dance, act, read, write, hang out with my boyfriend, family, and friends.

I'm here because I'm currently undergoing treatment at the Cleveland Clinic and my neurologist thinks I might have Reflex Sympathetic Dystrophy. He believes that my RSD was caused by my DVT (Deep Vein Thrombosis) aka a blood clot that I developed in my leg when I was 20 in August of 2010. The DVT was caused by May Thurner Syndrome, a rare but curable disease. I was diagnosed with May Thurner Syndrome in June of 2011. The DVT has done some damage to my veins. After my MTS diagnosis, I was great until December of 2011, when I was in a car accident and the pain started again. I saw more doctors and more hospitals than I care to admit. Thankfully, my pain is being successful controlled through Lyrica and a sympathetic nerve block that I had last month. The RSD diagnosis isn't official because I underwent a special punch biopsy at the Cleveland Clinic that is only done in a few other hospitals in the United States. The biopsy was done on August 5th and it takes 4-6 weeks to get the results back. Until the biopsy gets back, my doctor can't make an official diagnosis.

Throughout all of this, I've had the support of my amazing family and friends. God has blessed me with their support. Despite the pain, I've still done well in school and have made the Dean's List a few times! I still lead a very busy life filled with school, work, and many other things. Now that my pain is being controlled, my life is so much better. The pain that I've experienced was awful, awful, awful, awful!! It would leave me crying hysterically despite having multiple pain medications in my body. It wasn't until I started taking Lyrica that my life changed and the pain began to be controlled. I'm not 100% pain free. I still can't lie on my left side or my back for long periods of time without ice. However, considering a few short months ago, when sitting in a chair for more than 30 minutes would cause terrible pain, I can definitely say I've made progress!

I can't wait to meet all of you and am glad to be here!

Hello, glad to to have found this forum. I've been reading the threads over the past few months and finally decided to join. I was diagnosed with CRPS in my right foot & ankle earlier this year. It's taking over my life and I hope to find some help and support here, and advice. I will post my story in a new thread.