Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 12-14-2013, 07:00 PM #1
Nancy Wilson Nancy Wilson is offline
Junior Member
 
Join Date: Dec 2013
Posts: 7
10 yr Member
Nancy Wilson Nancy Wilson is offline
Junior Member
 
Join Date: Dec 2013
Posts: 7
10 yr Member
Default I am a newbie

Hello: I am a newbie to NeuroTalk. I was diagnosed with RSD two weeks ago, I have been disabled since 2005 due to an auto accident. I have been battling fibromyalgia, perephial neuropathy, arthritist, migraine headaches, IBS, and several damaged disc in my spine since the accident. I really would appreciate making new friends who understand what I am going through. I have a awesome family, they do their best trying to understand what I am going through, but as you all know, unless you walk in our shoes it is impossible to really understand our struggles. Thanks for being here.
Nancy Wilson is offline   Reply With QuoteReply With Quote
Old 12-14-2013, 11:21 PM #2
fbodgrl's Avatar
fbodgrl fbodgrl is offline
Member
 
Join Date: Dec 2012
Location: Eastpointe, MI
Posts: 259
10 yr Member
fbodgrl fbodgrl is offline
Member
fbodgrl's Avatar
 
Join Date: Dec 2012
Location: Eastpointe, MI
Posts: 259
10 yr Member
Default



Welcome to the group.
__________________
Zookeeper
~Shelly~
fbodgrl is offline   Reply With QuoteReply With Quote
Old 12-16-2013, 11:47 PM #3
heatherg23's Avatar
heatherg23 heatherg23 is offline
Member
 
Join Date: Feb 2008
Location: SouthEast Wisconsin
Posts: 106
15 yr Member
heatherg23 heatherg23 is offline
Member
heatherg23's Avatar
 
Join Date: Feb 2008
Location: SouthEast Wisconsin
Posts: 106
15 yr Member
Default

Quote:
Originally Posted by Nancy Wilson View Post
Hello: I am a newbie to NeuroTalk. I was diagnosed with RSD two weeks ago, I have been disabled since 2005 due to an auto accident. I have been battling fibromyalgia, perephial neuropathy, arthritist, migraine headaches, IBS, and several damaged disc in my spine since the accident. I really would appreciate making new friends who understand what I am going through. I have a awesome family, they do their best trying to understand what I am going through, but as you all know, unless you walk in our shoes it is impossible to really understand our struggles. Thanks for being here.
Hi Nancy,
Well you have plenty of friends here. You can say anything and we can relate. I wanted to mention something about your Fibro... I was wondering if your accident (if thats when you damaged your discs) coincided with your Fibro diagnosis. You don't have to answer but I'm asking because I had a torn disc in my back for 10 years but instead I was misdiagnosed with Fibromyalgia. It was a hellish 10 yrs. I had a minor surgery to fix it and the pain was gone for good! The tear was so tiny 12 previous docs didn't even see it on an exray. During those years I had pain in both arms, most of my back and both legs. I thought if the fibro dx & your disc injury happened at the same time that might be a possible answer. just throwing it out.

You have been through a lot with that list of conditions. That can't be easy. I have multiple conditions and having this place to vent is extremely helpful. Also to learn, I've been back on the site for a few weeks now and have learn several new things. you can ask just about anything and get some answers.

Take care of yourself!!
Heather
__________________
---------------------------------------------------
RSD since 8/2005
Originally in left and right foot
Spread in 2006 and Jan 2014
Both legs, arms.
Chronic pain going back to 1992

.
heatherg23 is offline   Reply With QuoteReply With Quote
Old 01-23-2014, 05:58 PM #4
lonewolf's Avatar
lonewolf lonewolf is offline
Junior Member
 
Join Date: Jan 2014
Location: Vandergrift, PA
Posts: 38
10 yr Member
lonewolf lonewolf is offline
Junior Member
lonewolf's Avatar
 
Join Date: Jan 2014
Location: Vandergrift, PA
Posts: 38
10 yr Member
Default


Hello I'm new here also new to crps/2
I had a foot injury in July 2012 from a abusive partner. He did not allow me see a dr. I got out of that in Aug.2012, went to the dr. in Oct. 2012. He sent me to a surgeon, had a MRI find out I had a torn tendon(12/2012). Had surgery in April 2013. My foot got worse after surgery, July 2013 had another MRI, he told me some people take longer to heal. I was in alot of pain so he put me on Tramadol 50mg every 6hrs. help some. Well my pcp didn't like that, so he sent me for a second opinion in Sept. 2013. He told me I have nerve damage & put me on gabapentin 300mg 3X daily, kept me on tramadol & sent me to a pain dr. I got a app. for 12/9/13 she agree about the nerve damage & upped my gabagentin to 600mg 3X daily & send me to the Hosp. for test, on 1/8/14 had a Bone Scan & EMG, I was diagnose at the Hosp. for CRPS/2. This has been a long painful wait. My pain dr. said yes to the crps/2 & upped my gabagentin to 900mg 3X daily, toke me off tramadol put me on Nucynta ER 50mg 1tab. every 12 hrs.
I need to start Phy. therapy but with my ins. have to hold on that. no income, live with my Mom & son. I just hate it when I have to count on them. I'm the one who is to be taking care of them. My son has MD, get SSI.
lonewolf is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Introductions CoolAngel26 Survivors of Suicide 62 05-24-2017 08:23 PM
introductions and such, looking for advice dwnwardspiral New Member Introductions 5 10-29-2013 11:44 AM
Introductions - Hello bari.o Reflex Sympathetic Dystrophy (RSD and CRPS) 3 10-08-2010 10:04 PM
Introductions biggunks New Member Introductions 5 05-08-2010 06:06 AM


All times are GMT -5. The time now is 03:48 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.