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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Hello: I am a newbie to NeuroTalk. I was diagnosed with RSD two weeks ago, I have been disabled since 2005 due to an auto accident. I have been battling fibromyalgia, perephial neuropathy, arthritist, migraine headaches, IBS, and several damaged disc in my spine since the accident. I really would appreciate making new friends who understand what I am going through. I have a awesome family, they do their best trying to understand what I am going through, but as you all know, unless you walk in our shoes it is impossible to really understand our struggles. Thanks for being here.
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#2 | |||
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![]() Welcome to the group.
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Zookeeper ~Shelly~ |
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#3 | |||
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Well you have plenty of friends here. You can say anything and we can relate. I wanted to mention something about your Fibro... I was wondering if your accident (if thats when you damaged your discs) coincided with your Fibro diagnosis. You don't have to answer but I'm asking because I had a torn disc in my back for 10 years but instead I was misdiagnosed with Fibromyalgia. It was a hellish 10 yrs. I had a minor surgery to fix it and the pain was gone for good! The tear was so tiny 12 previous docs didn't even see it on an exray. During those years I had pain in both arms, most of my back and both legs. I thought if the fibro dx & your disc injury happened at the same time that might be a possible answer. just throwing it out. You have been through a lot with that list of conditions. That can't be easy. I have multiple conditions and having this place to vent is extremely helpful. Also to learn, I've been back on the site for a few weeks now and have learn several new things. you can ask just about anything and get some answers. Take care of yourself!! Heather
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--------------------------------------------------- RSD since 8/2005 Originally in left and right foot Spread in 2006 and Jan 2014 Both legs, arms. Chronic pain going back to 1992 . |
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#4 | |||
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Junior Member
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Hello I'm new here also new to crps/2 I had a foot injury in July 2012 from a abusive partner. He did not allow me see a dr. I got out of that in Aug.2012, went to the dr. in Oct. 2012. He sent me to a surgeon, had a MRI find out I had a torn tendon(12/2012). Had surgery in April 2013. My foot got worse after surgery, July 2013 had another MRI, he told me some people take longer to heal. I was in alot of pain so he put me on Tramadol 50mg every 6hrs. help some. Well my pcp didn't like that, so he sent me for a second opinion in Sept. 2013. He told me I have nerve damage & put me on gabapentin 300mg 3X daily, kept me on tramadol & sent me to a pain dr. I got a app. for 12/9/13 she agree about the nerve damage & upped my gabagentin to 600mg 3X daily & send me to the Hosp. for test, on 1/8/14 had a Bone Scan & EMG, I was diagnose at the Hosp. for CRPS/2. This has been a long painful wait. My pain dr. said yes to the crps/2 & upped my gabagentin to 900mg 3X daily, toke me off tramadol put me on Nucynta ER 50mg 1tab. every 12 hrs. I need to start Phy. therapy but with my ins. have to hold on that. no income, live with my Mom & son. I just hate it when I have to count on them. I'm the one who is to be taking care of them. My son has MD, get SSI. ![]() ![]() |
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