Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-14-2014, 11:11 PM #1
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Phaedra Phaedra is offline
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Phaedra Phaedra is offline
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Join Date: Apr 2014
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Default About Phaedra

Just thought I would share a little bit of how I ended up here and who I am. I am married. I have two grown children from previous relationships. I am or was a truck driver for 4 and 1/2 years. I was driving a bus at a well known Christian University. This is where I was at when I fell in the parking lot going down to the lower bus lot. This fall sprained the inside of my right ankle and tore the ligaments on the outside of my right ankle. I hit so hard on my right knee that It caused patella femoral maltracking problem, bursitis, chronic exertional compartment syndrome, and the MRI also showed a entrapped nerve in my knee. This is what caused the CRPS. Weather it was the damage to the ankle or to the knee that actually caused it, I don't know. I fell mid DEC. and only got a little better. It wasn't until I had the emg done in the first part of March that CRPS was even diagnosed by a orthopedic doctor ( not my doctor) in another city. I had to wait till the end of March to actually hear it from my doctor. Still waiting on the Pain Management Doctor don't get to go see him until Mid June. I so enjoy the waiting game that certain organizations like to force people to play. I have had a whole host of problems arise from this. Panic attacks, blood pressure issues, cycle problems, and of course spreading. I now feel this in both my legs and arms, I even feel it in my body. The newest thing is now my sugar likes to drop and make me sick. This is all new to me and have never had these kinds of issues. So now That I have shared my ugly story. What is next?
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Old 05-15-2014, 08:27 AM #2
ginnie ginnie is offline
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Default Hello Phaedra

I am so sorry about your fall causing CRPS. I know how awful that is. I was lucky and only got PN from injury.
While you are waiting for pain management, look up Ketamine infusions. This is the latest being done for CRPS and it has a good track record. Hard to find places in the US that works with this. Tampa Bay hospital is one of them. This Ketamine has had remission reports, through JAMA which is a medical journal with articles from around the world. This mag. keeps up with the latest in research. You might want to ask you doctor when you go see him. If he is has education about this, he may recommend something like this. I wish you all the best. ginnie
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Old 11-23-2014, 02:46 AM #3
LISAR624 LISAR624 is offline
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Originally Posted by ginnie View Post
I am so sorry about your fall causing CRPS. I know how awful that is. I was lucky and only got PN from injury.
While you are waiting for pain management, look up Ketamine infusions. This is the latest being done for CRPS and it has a good track record. Hard to find places in the US that works with this. Tampa Bay hospital is one of them. This Ketamine has had remission reports, through JAMA which is a medical journal with articles from around the world. This mag. keeps up with the latest in research. You might want to ask you doctor when you go see him. If he is has education about this, he may recommend something like this. I wish you all the best. ginnie
I wonder if MEDICARE pays for these Ketamine infusions? LISAR624
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Old 11-23-2014, 02:44 AM #4
LISAR624 LISAR624 is offline
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LISAR624 LISAR624 is offline
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Quote:
Originally Posted by Phaedra View Post
Just thought I would share a little bit of how I ended up here and who I am. I am married. I have two grown children from previous relationships. I am or was a truck driver for 4 and 1/2 years. I was driving a bus at a well known Christian University. This is where I was at when I fell in the parking lot going down to the lower bus lot. This fall sprained the inside of my right ankle and tore the ligaments on the outside of my right ankle. I hit so hard on my right knee that It caused patella femoral maltracking problem, bursitis, chronic exertional compartment syndrome, and the MRI also showed a entrapped nerve in my knee. This is what caused the CRPS. Weather it was the damage to the ankle or to the knee that actually caused it, I don't know. I fell mid DEC. and only got a little better. It wasn't until I had the emg done in the first part of March that CRPS was even diagnosed by a orthopedic doctor ( not my doctor) in another city. I had to wait till the end of March to actually hear it from my doctor. Still waiting on the Pain Management Doctor don't get to go see him until Mid June. I so enjoy the waiting game that certain organizations like to force people to play. I have had a whole host of problems arise from this. Panic attacks, blood pressure issues, cycle problems, and of course spreading. I now feel this in both my legs and arms, I even feel it in my body. The newest thing is now my sugar likes to drop and make me sick. This is all new to me and have never had these kinds of issues. So now That I have shared my ugly story. What is next?
Reading everyone's story sure helps and sounds so familiar! I have never had problems with my body like I've had since getting RSD 18yrs ago! I was looking at your issue with sugar dropping and I have that same problem. When I see my Dr. on my next appt. I am going to ask her about my RSD and issues with my health! Thank you LISAR624
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