Hi Alison, glad to meet you! Thanks for the response to my post, you are so young to be dealing with something as terrible as rsd, and I'm so sorry to hear you've had it for that long. I hope you have a great support team. I'm 26, with some wonderful family and friends trying to help me out and still having such a hard time dealing with it all, I can't begin to imagine how hard it must be for you; you're obviously a very strong young woman...

I'm also on the Lyrica, clonidine, amitriptyline, percocet, and valium; along with the fentanyl patch and the Catapres patch, so basically, I'm a walking (or riding) zombie, lol. They've got me in a wheelchair now...

Good luck with your PT program. That's one thing I've been a bit confused about, I was under the understanding that pt played a big role in the treatment of rsd; however, my team of doctors will not send me. I've been told that pushing too hard will only worsen the condition and perhaps cause further spread, so I'm supposed to try and move as much as possible at home, but not to push it. The last couple of weeks I've lost any flexibility in my left leg. My toes and foot are arched up as far as they can go and my leg is bent at the knee; I'm completely locked in to this position which makes sleep about impossible...

Anyhow, I guess just trying to get by day by day is all we can really do, I'm still holding out hope for a "miracle cure" but as i'm now only getting 2nd and 3rd opinions, that hope is fading fast... I hope you're having a "good day" as well and will count you in my prayers...

Take care my friend,
Sarah