Hi everyone! Unfortunately I am not new to RSD. I had two episodes when I was younger. One when I was 13 and one when I was 18. I had rsd in my leg and foot, and with both occasions it came on suddenly with no injury. These episodes only lasted a few months and then went away. I am 32 yrs old and having my 3rd episode of RSD and this episode is the worst ever. My story of my 3rd episode sounds amazing and unique to everyone I tell it to including doctors. So here it goes. 6months ago I woke up with major swelling in my riight leg and ankle. And again I did nothing to cause injury. I didn't fall or get injured playing sports, nothing like that. It took 3months to get a diagnosis after seeing many doctors and getting many tests done, as I;m sure many of you are aware of. I have been going for pool pt which hasent been helping. With the amount of pain i am in daily it is very hard for me to bear weight in water let alone on land. One of my doctors has me on Lyrica but I am not noticing any improvement with that either. I have had 1 nerver block done and didnt have any luck with that either. My doc now is doing a treatment where a cathreter is inserted into your spine to have daily injections of steroids (i think) to try and reverse the rsd. He is also numbing my foot and leg and trying PT that same day to hope the PT's can work with me and my pain threshold a bit easier. But again I am not having nay results with that. My doc also wants me to take Cymbalta and to try not taking the percot. So I will see how well this goes over. Will post more later when I am feeling up to it. Can't sit in a chair for very long. I look forward to chatting with everyone. !

Hi Superduck95!

Hi Superduck95!

I guess I punched the wrong button too early. Anyway, welcome to NeuroTalk. You'll find so much comfort and encouragement on this forum. So many wonderful, encouraging friends and knowledgeable, caring, sympathetic and understanding friends. It's good the 3rd time around you got a diagnosis. It was my 3rd time around too, the first 2 'spells' were from surgery and the third was from water skiing on my left hand. Misdiagnosed and didn't get pt soon enough, so have a claw for a hand, but at least can cut my food, and put on clothes. I also found warm water therapy in a pool wonderful. We have a heated pool and I spend a lot of time in it, especially in the summer. swimming helps so much to keep from freezing up. I have full body. 32 is young. Hopefully you can get it under control. I believe the first two times I had so much pt and massage therapy was responsible for getting the use of my arms back and also touch therapy allowed me to get use of my limbs without being sensitive to touch. At the stage I'm at now, I have a lot of skin lesions, and now blisters. I'm checking into HBOT. My Dr. will have the first two units in my state 'out of hospital' His are hospital grade. Now, hoping my insurance will cover this treatment.

Percocet, I know you are in a lot of pain. The Cymbalta helped me, So did the Lyrica, but now am going down on mg. of Lyrica to 100................ Do you have blood pressure issues? Many do because RSD is a autotomic disorder, affecting involuntary organs I have both high and low blood pressure. High is the sympathetic nervous system and low is the parasympathetic nervous system.

Hope the best for you and don't give up. You'll hear from a lot of friends from here. May be a bit slow because of time of year, but it will pick up. Take care, Loretta Jewell