Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-19-2009, 01:47 PM #11
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cindi1965 cindi1965 is offline
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Join Date: Jul 2009
Location: West Virginia
Posts: 375
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cindi1965 cindi1965 is offline
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cindi1965's Avatar
 
Join Date: Jul 2009
Location: West Virginia
Posts: 375
15 yr Member
Default newbie to the forum

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Hello,
I am new to the forum and am so happy that I have found it. I was diagnosed with RSD/CRPS a year ago after having a staph infection in my lower left leg. It is now spreading and I have been to doctor to doctor trying to get them to listen to me. I finally found a good pain management dr. and he doesn't take my insurance. There are very few doctors in my area that will honestly diagnose and treat this disorder. I don't know what to do.

I also was born with Cerebral Palsy that has effected both of my legs, so now I have a double whammy with the RSD. I just need someone who will listen and a place to sound off when I get down, because as a lot of sufferers know you can't always get the support of their families.

My family is suffering because I used to have 2 jobs and now I can barely take care of my house. My husband tries really hard to make it easier on me, but he misses the way I was before. He continues to be wonderful, but I would like to make friends on here who understand why I don't want certain material on my leg and arms, and why some days are good and some days are really bad.

Thanks for listening.
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