Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-29-2009, 07:32 PM #1
maryam71 maryam71 is offline
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Originally Posted by Sheri View Post
Just diagnosed 6 months ago, not much support or experience for the medical community in the area where I live.
i was diagnosed 2months ago i had surgery on my foot for servere tendinitis i agreed to have the surgery but i never thought it would turn out to be this way 3 days after surgery the doc said you have rsd and all he could say is he is sorry i really dont know when i will be able to wear a shoe again.my calf muscle has waisted away it very weak there are days when i cry myself to sleep at night i really dont know when i will be able to go back to work i really need to research more rsd from what i read on the internet there is no cure for rsd i dont believe i can live with this i hope and pray there is a cure
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Old 07-30-2009, 12:47 PM #2
Jimking Jimking is offline
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Originally Posted by maryam71 View Post
i was diagnosed 2months ago i had surgery on my foot for servere tendinitis i agreed to have the surgery but i never thought it would turn out to be this way 3 days after surgery the doc said you have rsd and all he could say is he is sorry i really dont know when i will be able to wear a shoe again.my calf muscle has waisted away it very weak there are days when i cry myself to sleep at night i really dont know when i will be able to go back to work i really need to research more rsd from what i read on the internet there is no cure for rsd i dont believe i can live with this i hope and pray there is a cure
Welcome maryam, very sorry about the diagnoses. When you do your research look closely at ketamine infusions. This may be the way for you to go since you are in the early stages in which this procedure has had good results. Get as many friends and family to help you and move as fast as you can manage.
ttp://rsdhealthcare.org/Institute_Announcement.html
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Old 08-01-2009, 06:54 PM #3
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Originally Posted by maryam71 View Post
i was diagnosed 2months ago i had surgery on my foot for servere tendinitis i agreed to have the surgery but i never thought it would turn out to be this way 3 days after surgery the doc said you have rsd and all he could say is he is sorry i really dont know when i will be able to wear a shoe again.my calf muscle has waisted away it very weak there are days when i cry myself to sleep at night i really dont know when i will be able to go back to work i really need to research more rsd from what i read on the internet there is no cure for rsd i dont believe i can live with this i hope and pray there is a cure
so sorry ur so miserable. u have joined a great support group! i've been diagn for 15 mos. now. i think there's control - maybe remission - & not complete cure! everyone has great advice...we've all "been there kinda thing"! my prayers r w/u. get a good dr., helpful meds & depend on God!
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Old 08-01-2009, 10:48 PM #4
Dubious Dubious is offline
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Originally Posted by maryam71 View Post
i was diagnosed 2months ago i had surgery on my foot for servere tendinitis i agreed to have the surgery but i never thought it would turn out to be this way 3 days after surgery the doc said you have rsd and all he could say is he is sorry i really dont know when i will be able to wear a shoe again.my calf muscle has waisted away it very weak there are days when i cry myself to sleep at night i really dont know when i will be able to go back to work i really need to research more rsd from what i read on the internet there is no cure for rsd i dont believe i can live with this i hope and pray there is a cure
Maryam71,

Don't take this laying down! If you have not done so already, get aggressive with persuing pain managment; blocks , meds and whatever else you can grab. You are in the golden zone where you at least have a fighting chance to attack this! After a few months, it may be too late to do much other than play catch-up...
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