Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-11-2011, 08:20 AM #1
katcam831 katcam831 is offline
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Join Date: May 2011
Location: Richmond, VA
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katcam831 katcam831 is offline
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Join Date: May 2011
Location: Richmond, VA
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Default Hello to everyone

Quote:
Originally Posted by heatherg23 View Post
I have to say thanks for your story. I was trying to find people whom has had the burning pain travel through other parts of the body. I have a lawsuit going because of an accident that caused my rsd. It started in my feet and achilles tendon's. 5-6 months later I also had severe burning pain in the back of my calf, thigh and my butt burns as well. I can't sit for very long, stand or walk. I actually lay in bed all day. I have to find a way to prove that rsd can spread. Just sitting here typing causes to much pain.

Thanks again
Heather
I realize that this response comes many years after the question was asked but YES, RSD can and does (for many) spread. Drs. Robert Swartzman and Anthony Kirkpatrick (you can search for them online) can most likely provide you with written studies proving this. Dr. Swartzman is in PN and Dr. Kirkpatrick is in FL. Sometimes the disease never spreads (lucky folks) and others may not spread for years...others (like me) have very rapid spreading of this demonic disease. Mine began in Feb '09 and was full body by Dec '09. I was hospitalized in April of '10 with internal bleeding associated with the RSD.

Good luck,
Kathy
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"Thanks for this!" says:
linda_sd02 (05-11-2011)
Old 06-18-2011, 07:40 PM #2
ichigopocky ichigopocky is offline
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ichigopocky ichigopocky is offline
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Default Hello

I am 16 years old and I was diagnosed in March with CRPS only after one month of the initial pain. They still aren't sure of what caused the pain in my arm but already 3 months late I am a lot better then before.
However due to this two other medical problems have come up so I am having to deal with that and school work.

But for right now I am really just wanting a place to talk to people who understand the pain and everything I am going through. While I know my parents and friends love me and know something is wrong the second hardest part of all this is the loneliness.
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