Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-05-2012, 03:11 PM #1
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A little bit about me.

My name is Candice, i am 21 , and I was working as a 911 dispatcher, I am no longer able to work. Fortunately, I have a wonderful family that had been really supportive and loving through everything.

I was Diagnosed June 26,2012, after months of being in pain and not understanding, and being passed doctor to doctor. My rsd/crps is in my right hand.

I dont have a lot of people who know what this is, or what it has done and is doing to me. I am so lost in this.. I have some many questions, and no answers
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Old 07-05-2012, 04:19 PM #2
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welcome Candice to the group. You will find your answers here in this wonderful bunch of people. I am sorry about hearing you have rsd, but glad to meet you.
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Old 07-05-2012, 04:30 PM #3
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Pamela 36 Diognosed June 27,2012.... Im blessed with hope today. First SGB in a week and half and wondered if anyone has experienced relief from the block?
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Old 07-05-2012, 08:55 PM #4
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Welcome to the group. Sorry to hear your recent diagnosis of RSD. But glad to have you here.

There has been people here who have gotten relief from SGB. Personally I had an LSB, because mine is in the foot.

Quote:
Originally Posted by MommadukesCRPS View Post
Pamela 36 Diognosed June 27,2012.... Im blessed with hope today. First SGB in a week and half and wondered if anyone has experienced relief from the block?
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Old 07-06-2012, 08:46 AM #5
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Default Hi Alt

Can you tell me what LSB is. I only recently have been told I have RSD like symptoms in my foot. I thought it was just PN. Sorry I don't know this term, but I am seeking relief other than pain killers. I read where RSD doesn't like narcotics. thanks for helping. ginnie
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Old 07-11-2012, 03:12 AM #6
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Default Lsb..

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Originally Posted by ginnie View Post
Can you tell me what LSB is. I only recently have been told I have RSD like symptoms in my foot. I thought it was just PN. Sorry I don't know this term, but I am seeking relief other than pain killers. I read where RSD doesn't like narcotics. thanks for helping. ginnie
Lumbar Sympathtic block, usually for lower back. I had a SGB, Stellate ganglion block which is injected in your neck for arm/shoulder RSD. Personally, the block seemed to produce a reaction to me. Stiff neck, swollen jaw, swollen gums and tongue and a horrific headache and low grade fever. It was not a good experience! I would certainly give the injection a try after speaking with your dr. Seems they do help some patients. I feel after mine, my neck still bothers me even though before the block my neck was never an issue. I also feel it heightened other symptoms that were gone and now they are back. I feel it spread to my neck, chest and my lower back too. This past week or so, my knees are so painful it's unbearable. Pain meds are not good to take everyday but something like Lyrica etc to try to ease the pain so we can kind of feel normal. I hope it helps you!
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Old 07-14-2012, 05:37 PM #7
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Im really not sure if Im doing this right but I wont know till I try. Im very sorry for all of you who have RSD. I really dont know what to say or how to Im at a very low right now with it. I dont even know how to use these forums so this is my test post. Its hard for me to sit here so Im not going to get into my long drawn out story till I know I can even post right. But Ive been suffering from RSD since june 8 2012.
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Old 07-06-2012, 12:24 AM #8
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Quote:
Originally Posted by MommadukesCRPS View Post
Pamela 36 Diognosed June 27,2012.... Im blessed with hope today. First SGB in a week and half and wondered if anyone has experienced relief from the block?
You werediagnosed right at the same time as me I was diagnosed finally the 26th. I've at a sgb recently and it helped for a day 1/2 , I had a lot of pain in my neck from the injection. But I have neck and spine issues already.. I hope you get some good relief!
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Old 07-06-2012, 06:11 AM #9
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I found that I didn't get any long term relief from my lsb. (lumbar sympathic block) (more then a day) when the dr. did injections every 3 weeks. But when they did 3, one a week for 3 weeks. I got relief for 6 months. (it was great) I recomend that you ask your dr. to be aggressive as possible.
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Old 07-06-2012, 07:09 AM #10
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Good morning.......My plan is to speak with her (dr) and be aggressive. Thank u. The relief will be a blessing. My family thinks this is the cure and I keep trying to tell them it may to be, but they don't understand. Sometimes I feel like they think this all I Can talk to them about but don't realize it is Always present and any moment rearing it's ugly head.What am I suppose to do? I'm so happy to meet you both and hope I can get this under control soon or bearable.
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