Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-30-2012, 06:53 AM #1
CWilhite CWilhite is offline
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Hi guys,

I've posted a few things on here but I thought I would post here as well. I'm Crystal and I've been battling RSD for the last two years. In 2010 I broke my ankle while at work, it was a silly injury and seemed minor in the beginning but looking back, my life has changed drastically. Since my injury I've 7 surgeries, one of them including a permanent implant for an SCS. Along with the surgeries, I have also had 7 Lower Lumbar Sympathetic Nerve Blocks in order to try and force my RSD to calm down or go into remission. Since my injury is surrounded by a Workman's Comp case, I've had to work around what they feel like is necessary treatment for me to receive. I feel like after two years, I still have many unanswered questions about what's going on with my body and I'm still undergoing changes with my RSD. I've already found so much wonderful information from reading your posts and I look forward to continuing learning and hopefully from what I've experienced I can help someone too!
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Old 11-02-2012, 05:58 PM #2
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Welcome I hope you find the answers you are looking for. Here we learn from each other, so if you have tried something and it has worked or failed please share your experience.

I too deal with workers comp and know your frustration. It is a constient battle. Just hang in there. God as a plan for all of us.

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Originally Posted by CWilhite View Post
Hi guys,

I've posted a few things on here but I thought I would post here as well. I'm Crystal and I've been battling RSD for the last two years. In 2010 I broke my ankle while at work, it was a silly injury and seemed minor in the beginning but looking back, my life has changed drastically. Since my injury I've 7 surgeries, one of them including a permanent implant for an SCS. Along with the surgeries, I have also had 7 Lower Lumbar Sympathetic Nerve Blocks in order to try and force my RSD to calm down or go into remission. Since my injury is surrounded by a Workman's Comp case, I've had to work around what they feel like is necessary treatment for me to receive. I feel like after two years, I still have many unanswered questions about what's going on with my body and I'm still undergoing changes with my RSD. I've already found so much wonderful information from reading your posts and I look forward to continuing learning and hopefully from what I've experienced I can help someone too!
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GOD help me be faithful in the midst of my suffering. Alt1268
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Old 11-02-2012, 08:40 PM #3
pg2005 pg2005 is offline
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Guess I better introduce myself. You can call me PG. I've had CRPS in my left leg for 8 years now. Things have only declined over that time. Been through the ringer with treatments. I declined a SCS several years ago, but have now decided I'm going to try it. Currently awaiting insurance approval.
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Old 11-03-2012, 03:23 PM #4
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Welcome PG2005. Sorry you have been going through such pain the last 8 years. there is a scs site striclty for people who have or are getting scs. check them out.

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Guess I better introduce myself. You can call me PG. I've had CRPS in my left leg for 8 years now. Things have only declined over that time. Been through the ringer with treatments. I declined a SCS several years ago, but have now decided I'm going to try it. Currently awaiting insurance approval.
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Old 11-04-2012, 11:34 PM #5
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Smile Hi ALT.... Been a While!

Hi ALT, I am so glad to see you posting on new member introductions! What a profound ministry of sharing the blessing of care with folks! You are very active, and I am glad to find you here after missing you on the SCS subforum.

Hi Rhonda, CW and PG! There are answers to be learned from all perspectives of the approach to medicine and a possible alternative, if not as in my case substitute, to pill methodology to pain management. I have the Boston Scientific Spinal Cord Stim and have used it 24/7 now for well over two years, achieving full low lumbar and leg pain management with its electronic signature.

Numerous manufacturers offer alternative devices, and some even are used to inject medications directly into the body via a pain pump mechanism, many of which are addressed on the SCS and Pain Pump sub forum under medications and treatments found here-

http://neurotalk.psychcentral.com/forum118.html

Come on over and check us out by clicking the link to the master web directory of our threads! You will meet cool folks from all over and many paths of life who similarly seek answers to important questions while also keeping the eyes alert for a sense of HOPE.

You might even find us engaging from time to time in a virtual party or BBQ at Pooh's ranch in Nowhere up there near Somewhere Out There. We do have fun, and even are known to LAUGH.

Hoping to see you on the threads,
Mark56
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