Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-26-2012, 10:03 PM #11
NerPain4 NerPain4 is offline
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Join Date: Mar 2010
Location: Pacific NW
Posts: 37
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NerPain4 NerPain4 is offline
Junior Member
 
Join Date: Mar 2010
Location: Pacific NW
Posts: 37
15 yr Member
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Thanks Jenny, Mark and Ginny!

When I look over my medical records, the doctors were mentioning it in 2009. However, I had TOS surgery and then recovered from that, and then realized some of the pain in the forearm/arm/hand did not fully go away with the surgery. And honestly, after surgery, I have pain in areas that I did not have it in before, like my chest, neck and up to ear. The pain on the Left Side comes with activity, whereas the pain on the Right is there 24/7, but gets worse with activity too! And now I am having pain in my R thigh.

The surgery helped the most with the most severe pain in my trapezius, which felt like a hatchet knife. The hatchet knife really made me want to die! It is pain that you really can't live with for very long. I can't even bear to recall how bad the pain was, now. The surgery helped relieve the vascular issues, now I have a pulse in my right arm.

I think CRPS was confirmed after I had my 6th Stellate Ganglion Block. All of the SGBs that were in the right place were "confirmatory" for CRPS pain.

I am really hoping to get a SCS. I have never heard of a Ketamine infusion, but I use a compounded Ketamine/Lidocaine/Ketoprofen pain cream which really helps ALOT so I am going to research this!

Thank you all for sharing here what works for you~ It is so important to keep one's spirits up and to keep on trying to live a better life with less pain.
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"Thanks for this!" says:
ginnie (11-27-2012), Mark56 (11-27-2012)
 


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