A,

Welcome to the forum, this is a great place to be for RSD'ers. There is a special group here. We learn from each other. Feel free to ask questions, post reply's or just read threads.

I am sorry for the continous injuries to your knee's and overall sadden by the fact that you have ended up with RSD. I would like to point out to you that "ICE" is a big NO NO for people with RSD, because it can cause spread and ultimately increase pain. I know you are heat intolerable for now, but try and do without it to limit further spread.

As far as LSB's I have had lots of them and it wasn't until my doctor started doing them weekly. The bad thing is there is a limit to how many you can get and eventually they just stop working.

Hello Alt..

Thank you for the welcome and the kind words. I have just begun to understand (yes, through this forum) the dangers of ice therapy with CRPS. I feel sick realizing what I've been doing to myself. All along I've felt that it was odd how much of the ice I felt I needed.. and how "responsive" the swelling and pain was to it. I checked again and again with each surgeon and physical therapist that I've had. "Keep icing if it helps and as long as you avoid thermal burn". Now that I have a pain specialist.. I would have hoped that she would have warned me from my dangerous habit. I made her aware of my need for ice as well, weeks ago when I started to see her. I will be contacting her about this.. as I'm quite upset.
I've just read this article.. and the last paragraph or so in particular makes complete sense, in a very real and painful way to me. I am very concerned about damage that I may have already done.

(Ice and Crps article on the RSD hope site.. I'm not allowed to post a link yet and had to remove it. : (

Again, however disturbing.. every bit of information is powerful. I want to fight this with everything I have.

A