Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-08-2009, 05:53 PM #1
mellowguy mellowguy is offline
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to all of you kind people who responded to my thought of getting together for a real time chat have given me some hope that this could work. As far as for me,,,,any night or day and anytime is fine with me. Being on ssi I don't have a lot of places to be. I understand that not everyone has a schedule like me so, I can work around anyone's time. To start, why don't we shoot for any weekday between the hours of 9:00 a.m untill 3:00 p.m EST. (I'm on the east coast) I understand that weekends are a tough time because of family issues, Most people work on weekdays or have children in school. At least this is a start. I hope you all have a pain free day and be safe.
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Old 11-08-2009, 08:35 PM #2
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Sounds good to me. My only life (besides the drama of teenagers!) is P.T. Name your time...look forward to it! Thanks for the great idea!
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Old 11-09-2009, 01:21 PM #3
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Unfortunately, I can't make it but I hope you have a wonderful time. Typing has become quite the challenge for me; it hurts to type. The quickness of chat is too demanding on my hands and arms and way too stressful for me. I have only chatted to 1 person for a very short time in the past year and although the chat session itself was pleasant and went well, I felt it in my arms and hands quite badly. So that's why I just don't bother anymore. It won't stop me from trying once in a while, though, I'm not a quitter, but right now --due to how the last chat session went-- it's out of the question.
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 11-10-2009, 06:13 PM #4
CZZ74 CZZ74 is offline
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Default Hoping for set hour inthe evening

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Originally Posted by CRPSbe View Post
Unfortunately, I can't make it but I hope you have a wonderful time. Typing has become quite the challenge for me; it hurts to type. The quickness of chat is too demanding on my hands and arms and way too stressful for me. I have only chatted to 1 person for a very short time in the past year and although the chat session itself was pleasant and went well, I felt it in my arms and hands quite badly. So that's why I just don't bother anymore. It won't stop me from trying once in a while, though, I'm not a quitter, but right now --due to how the last chat session went-- it's out of the question.
Hi I was hoping it would be as suggested, Tuesdays and thursday at 7pm. and then perhaps it would be open til 9pm. I feel that broad a time , 9am to 3pm, will be hit and miss for everyone again. Also i think during the day is tough. I hope the evening hours will be considered or perhaps both could be available.? Thanks
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Old 11-10-2009, 06:30 PM #5
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yes, it really is best to set a finite time to meet

why not just have all interested post here when the best time for them is and then pick the time when most will be available

I think you will find evenings usually work best for most
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Old 11-10-2009, 06:31 PM #6
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I meant to add that we can also designate an open RSD room in chat if members would like that, or you are welcome to meet in the Lounge if preferred
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Old 11-10-2009, 07:36 PM #7
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I agree that an evening time would be better- some of us still work but would like to chat- I think any nite 7-10pm would be good

Thanks
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