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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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to all of you kind people who responded to my thought of getting together for a real time chat have given me some hope that this could work. As far as for me,,,,any night or day and anytime is fine with me. Being on ssi I don't have a lot of places to be. I understand that not everyone has a schedule like me so, I can work around anyone's time. To start, why don't we shoot for any weekday between the hours of 9:00 a.m untill 3:00 p.m EST. (I'm on the east coast) I understand that weekends are a tough time because of family issues, Most people work on weekdays or have children in school. At least this is a start. I hope you all have a pain free day and be safe.
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#2 | ||
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Member
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Sounds good to me. My only life (besides the drama of teenagers!) is P.T. Name your time...look forward to it! Thanks for the great idea!
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#3 | |||
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Member
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Unfortunately, I can't make it but I hope you have a wonderful time. Typing has become quite the challenge for me; it hurts to type. The quickness of chat is too demanding on my hands and arms and way too stressful for me. I have only chatted to 1 person for a very short time in the past year and although the chat session itself was pleasant and went well, I felt it in my arms and hands quite badly. So that's why I just don't bother anymore. It won't stop me from trying once in a while, though, I'm not a quitter, but right now --due to how the last chat session went-- it's out of the question.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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#4 | ||
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Quote:
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#5 | |||
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Administrator
Community Support Team
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yes, it really is best to set a finite time to meet
why not just have all interested post here when the best time for them is and then pick the time when most will be available I think you will find evenings usually work best for most
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#6 | |||
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Administrator
Community Support Team
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I meant to add that we can also designate an open RSD room in chat if members would like that, or you are welcome to meet in the Lounge if preferred
__________________
~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#7 | ||
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Member
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I agree that an evening time would be better- some of us still work but would like to chat- I think any nite 7-10pm would be good
Thanks Debbie |
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"Thanks for this!" says: | CZZ74 (11-10-2009) |
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