i love far infrared products too. all my socks have it and my blankets and some of my clothes. it really helps keeping my hands and feet close to the same temperature as the rest of the body. i used to have a infrared sauna that was awesome too.

alaska is a horibble state to livein with crps. the cold is defitnetly hurting him. the scs made me much worse also, cant wait for it to come out. i dont know much about cold laser treatment except some people believe it depends on the person doing the treatment.(in other words, do they know what they are doing)

what is the hot laser treatment???

if you want to talk in person about treatments , let me know.

are you referring to cold in cold laser treatment/therapy, if so the cold laser just means low level. because of this, it makes it safe for pretty much anyone to use. there are lasers that cost a few hundred and others that cost tens of thousands. to me the more expensive ones seem to be working better.

rolfing rocks!!!

oops, i guess i should of read ahead a little and i would of seen tha Jo*mar had already replied.

yes i have a scs and its off because it doesnt help me, infact it hurts me. the rolfer just works around the wires and battery/generator. generally a rolfer does whats called a 10 series. each session is about 90 minutes or whatever you can handle. they only work on a specific area each session unlike a massage.

muscle soreness---yes

controlling spread---no, cuz i dont know if anything can stop spread. we know cold/ice and electical devices can cause spread and i bet other stuff too.

relaxation---yes and no. you are relaxed but you do have to participate in the therapy the whole time cuz they ask "is this pressure ok" several times in a session. they dont believe in the "no pain no gain", in fact, if you let them put you into too much pain it can defeat the treatment so its up to you to let them know how much pressure to use and exactly where.

general well being---yes so far and i am sure it will be much better after i complete a 10 series. fight now he has agreed to jump around on my body and do whats hurting me most that day rather than doing the 10 series in order and there is a very specific order.

i have crps pain in my legs,arms,face mostly.
low and mid back pain from failed surgeries and other spinal problems.
hip and shoulder pain from being bed bound over 3 years in a row.
alot of atrophy all over.

so far i am feeling better and walking with a cain slightly better.

just a quick update from this weeks treatments.

we worked on my ankles and tibia's, mostly below the knee work. this is where all my crps pain was originally. 2 years after getting crps2 it moved to my arms and then 2 years after that it moved to my face/cheeks. i am tolerating the rolfing. he does have to go lighter than normal and this might mean 2 or 3 sessions per area but that is ok by me. i have noticed that i can move slightly faster now. i do need a cane to get around. my steps are straighter(not so much sway) and they are further apart(rather than baby steps). i can go down the steps/stairs better too.

i have my first lidocain infusion this week so i dont know if that is going to affect my rolfing schedule but i will keep updating as i progress.

still improving with rolfing and laser work. it sure wipes me out which is good cuz i am getting sleep that way. i normally sleep from 5am to 11am but if i have treatment(rolfing or pt or dr. appt.) i will sleep 6pm to10pm and then off and on from 10pm to 5am and then get my normal sleep from 5am to 11am and then on and off from 11am to 4pm. i can never make appts following a treatment day. but i think "sleeping causes healing" so i am ok with this for now.

Hi Mike,

I want to find some alternative treatment for my daughter, she is 16 years old, and has had two sets of the Ketamine infusions with Dr. Kirkpatrick. She is in a pretty good flare right now. We have a person very close to us that does Rolfing, What kinds of questions did you ask the therapist before you let them touch your limbs. I just want to make sure that I find the right person. Thanks for your time, I am glad to hear that you are getting relief from this, and some good sleep.

Sandy

Hi Sandy,

make sure the rolfer has passed their advanced(which means they have at least 3 years of rolfing under their belt)(10 years would be better) and ask if they have worked on rsd or crps people. if they dont sound like they will be extra careful on your daughter then i would keep looking. i basically interviewed over the phone for several days before i found someone i trusted to work on my body. your closefriend should know who is the best in your area.

the first 2 monthswe stayed away from the crps areas cuz i was worried he would flare me up worse. my body is accepting work on the crps area but he has to do it very light so it will take extra sessions. last week i had a 48hour flare that did not give me a break and it was caused by the rolfing session. sometimes it does not matter, i will flare up regardless but as long as i improve my mobilty, i feel its worth it in the long run.

timing is everything, hopefully herbody will accept this treatment. i know my body could not handle any body touching me the first 4.5 years and now i can handle different treatments.

if i didnt answer your questions i amsorry. i am a little out of it right now. bad pain day.

Hi Mike,

Thank you for answering my questions. Yes those are great answers. I am sorry that you are in so much pain. I hope you have a better day tomorrow.

Sandy