Maybe you can try coming to our support group- As I told you it is in smithtown and it is helpful to talk to and meet other people- We meet every first friday of the month..Let me know if you want to come.

Debbie

can't believe i did it again...took to long to post with bathroom trips....i will make this faster....
i am on prozac (60 mgs for now)
xanex(2-3 per day)
have been on several others and combo of others--no help
vicoden es(5-8)
lyrica(100 mgs 2-3)
skelaxin(800 mgs 2-3)
oxycontin(20 mgs 3-4)
meclizine(3x's)
ambien cr(to sleep)
provigil(have samples ins. comp won't pay for these--- 200 mgs to wake up)

steve is my boyfriend of 7 yrs. who has siatic pain problems now so he understands somewhat....

tried therapy hurts alot more than it helps..do exercises at home 2-3x's daily

rsd pain to left arm--due to work on the job injury... workman's comp will not cover any other injury--consequenstial--or not--to the original injury 13 yrs ago...

almost made it thru one day...at least i got thru this letter 2x's with out my arm shaking as bad as it was this morning....

oh i almost forgot..debbie!!!!! yes i would love to go to the meeting...i keep remembering after the first friday...but i wrote it in my datebook(in pen) and will not forget next month...thank you again...do you have an address or # to the library? feel free to pm if you want to....thanks for helping,caring & sharing....linda

Just a thought here Linda.....

Could it be your on too many meds and they are making your symptoms worse OR counter acting each other???

Maybe some of the symptoms you are experiencing too are side effects of the meds your on...

Like I said - Just a thought and something to consider.

hey hubby with rsd.... nahh thought of that and checked and rechecked...switched to others...tried alot of different combos and not much of a difference...just somemore extra pain with others.....that is with and without therapy too.. tried and tried and tried and tried...my ortho who has seen me once a month for 13 yrs tells me that i was put on this earth to be tortured and will live forever....he is only joking but..it hits home...
i know there are others who have it worse than me and feel awful for them too..would love to take all our pain ball it up and send it floating.... either i am very sleepy or wired with very little energy...tried taking less of provigil--snoreZZZZZZ..tried other meds..double snoreZZZ..thanks for advice..linda

The reason I actually mentioned it is because one of the side effects of Lyrica is muscle spasms....But if you've looked into it - I'm not sure what else to think - I know RSD causes them - obviously - but I thought the Lyrica might contribute or make them worse - Actually this is something we are considering with my husband as well.

I saw someone mentioned spa or hot-tub therapy - Have you tried that?

It worked wonders for my husbands leg - He found relief with it - Of course nothing permenant but he could manage for a while.

hi.. yes i know and another side effect is weight gain(which i don't need either) they are using it for the nerve damage and it does seem to help????? not too sure yet..seemed better with it lately..
the side efffect of most of the meds we get to use all have side effects...damned if i use them..damned if i don't???
the hot-tub therapy actually hurts alot... my nerves in the elbow are not running the correct way..some of them are hitting the surface of my skin...anything that comes even close is severe..water is like short circuiting my nervous system... i have spasms something awful in my arm..when the nerves move or my fingers move a certain way OUCH!!! i use the lidoderm patches for the elbow and part of my forearm where they cut the tendons (2x's)..the wrist where they did the carpal tunnel surgery...now i am putting them on my ankle and side of left knee..can only use 3 at a time so i cut them to fit... asked dr if i put them on my head would it help???? but of course not..no such luck...trying to keep my sense of humor....linda

Your head - - LOL - I know that feeling some days...

Sorry to hear about the spa therapy not working for you - I know it sure helped hubby - Thought it might be something but...no such luck it sounds like....Grrrrr - Wish I had an answer for ya...

How do the lidoderm patches work!!?? I'm thinking this is something we'd like to suggest to hubbies Dr. - With his ulnar nerve damage this might be something that could be really helpful for him.

Hi Linda,

Sorry you're having such a dismal time, I hope you can find something to give you some relief. HwRSD makes a good point. I'd try to find a replacement for the vicoden, which is an opioid, it often causes allodynia/hyperalgesia all by itself.

here's an extract from the really excellent article posted by Roz/Buckwheat which is at:
http://appneurology.com/showArticle....leId=196513289

"Although opioids are the gold standard for treating acute pain, their use is highly controversial in CRPS. "We know that opioids cause hyperalgesia," said Harden. "If you have a drug that causes hyperalgesia and a disease that is characterized by hyperalgesia, how logical is it to use that drug in that disease?" Oaklander agreed that it was theoretically possible for opioids to worsen CRPS, but she said that this should not prevent physicians from prescribing opioids for certain patients who have CRPS. She did, however, caution that the lowest effective dose should be used. Some pain specialists advocate the use of methadone for the management of CRPS, according to Cruciani. Another possibility is an opioid in combination with an NMDA antagonist such as memantine (Namenda)."

You never know, just replacing that might help somewhat,
all the best

thanks artist...i will take that to my dr and see what he says..he is not a big fan of using methadone as i have asked him for it in the past.... and he rejected it saying he doesn't want me on that...or dilaudid...says it is too strong???? i said"stronger than vicoden es?" i have cut down on that alot was up 10-12 per day... almost 2 every 4 hrs.. and functioned???