Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-27-2009, 07:35 PM #14
Summertime Summertime is offline
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Join Date: Jul 2008
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Summertime Summertime is offline
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Join Date: Jul 2008
Posts: 109
15 yr Member
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I saw a few replies about the SCS, I know everyone is different & in the end the decision is yours. I wanted to share my story with the SCS...I've had it for a few months and want it out.The trial went great..the perm scs is awful for me,I've had it reprogrammed many times with no relief and my rsd has spread to other areas as result of the SCS. Anytime a person with RSD has surgery we risk a spread.
I do not want to scare anyone but please think this through ask as many questions as you can think of. Contact the company who will be doing the trial, ask your doctor for other patient input, see if there are other forums or social sites that can give you the help you need.
I wish I researched this more before I went ahead it with the perm scs.

All the best to everyone
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krank (11-28-2009), loretta (12-20-2009), RNcrps2 (01-05-2010), screwballpookie (11-29-2009)
 


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