Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-04-2009, 11:53 AM #21
AintSoBad AintSoBad is offline
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AintSoBad AintSoBad is offline
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Lynns,
That's a great example of "Pay to Play".

You're right, it is like a bank account. If we want to go to "Disneyland", we've got to buy a ticket. That's anyone. If WE want to go, we've got to buy that ticket, AND, some combination of: rest beforehand, take "Pre-Meds", Take it slow (meaning, we'll get less from the ticket), take breakthrough meds, crash and burn afterwards, possibly missing the next day at the park, and probably being less fun to be around!


EXPENSIVE TO BE IN PAIN... You pay in some way, that nobody else really notices, unless they're close to you, and experience it firsthand.


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Old 12-04-2009, 12:06 PM #22
stressedout stressedout is offline
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This is where I have trouble alot. I keep trying to do all the things I used to. The psychologist keeps telling me to pace myself. I used to be able to clean my whole house in one...maybe 2 days but now i am exhausted after vaccuming 2 rooms. I just keep feeling so stupid. Kids and hubby expect me to run errands and drive everyone around all day and then my husband wants me to go out with friends and to holiday parties etc. He doesn't get it. Sorry if I am venting I guess I'm just feeling a little down lately (on top of scared and frustrated). Wish my arm would just fall off so i could get back to being supermom.
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AintSoBad (12-05-2009)
Old 12-05-2009, 01:27 AM #23
Kakimbo Kakimbo is offline
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Awesome! Think of the "snow Days".
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