Hi I was posting to those that do not respond not to those that do. and particuarly not to you who I pm. thanks for the recap of "hank yous."Kind of a recrimination post.
we all have down days, I was having one, be it that I am stupid or what else, it took me forever to learn how to post pictures.
So this in partiucarly hit a nerve.
There are many people here,whose posts and have a 0 response. I was not just speaking out for my self.
Id like to end this and all posts on ths note by thanking those
that wrote sincere, notes acknowledging the hurt i was feelling, offered support and were so warm and sincere.
I was not seeking defensive responses or agressive responses.As I said I was just having a particuarly bad day as many of us do.
wishing everyone a better day and less pain. cz

Dear CZ,

I honestly felt very badly that I had missed your post and I must have been having a bad day myself because I when I read back what I wrote I did not mean for it to come out that way. I was wrong in how I worded my reply to you and I hope you will forgive me.

MsL

Msl, thank you so much, I am so sorry to hear you are having a bad day too. I know it seems like the anguish we have will never end sometimes. I understand it did not come out the way you meant it- happens to me all the time, thank you for straigtening it out for me- I really appreciate it. I hope your day and week gets so much better, thank you for everything, sincerely, cZ

Dear CZ,

I so happy you understand and forgive me. Honestly I felt horrified when I realized that I came across the way I did and especially how it made you feel. I sincerely want to thank you for being so thoughtful and supportive.

I hope you have a good day and week too.
MsL

[QUOTE=Mslday;599384]Dear CZ,

I so happy you understand and forgive me. Honestly I felt horrified when I realized that I came across the way I did and especially how it made you feel. I sincerely want to thank you for being so thoughtful and supportive.



I hope you have a good day and week too.
Please dont think of it again, Im thinking nothing but good thoughts towards you especially and all others . Happy Holidays MsL, I can not belieive they are almost here already my very best, cz

HI there, CZ. I can so relate to your post of dismay and hurt. It is hard to expose our vulnerability to "thundering silence". I likely was baffeled by your symptoms or diagnosis and simply skipped over it. Now I am reminded that I too have a complicated disease which is truly a rare disorder. I feel lonely and unseen here quite often, some posts exploring my options are too unknown for any responses.

I believe it is not due to any lack of great, compassionate, wise folks on site. Just my luck of the draw in this life. Thank you for verifying that for every post I thank, or send a validating message, there are possibly grateful, warm hearted appreciative folks, (hopefully anyway).

Conversely it is likely I often add unwittingly to the burden of lonely folks who often feel isolated and hurt, by offering only silence. I will continue to try and reach out when I am able. I hope others will do the same for me.

I know there are no guarantees. I cannot expect to "derive" compassion by giving it to others. But it is important to give it anyway. For myself, to offer without expectation, is the least harmful to my own self esteem. I hope you do feel heard and understood by the many responses here
We never really know how we affect others in sometimes amazing ways. So again Thank you for expressing what many often feel , but may not always share. A chance for all of us to check in with ourselves. Are we giving what we would like for ourselves with realistic integrity?

I often have to remind myself that holidays are often especially challenging and triggering for many stuck in the "chronic condition caravan" and the slow lane of life. Including myself...
Best wishes TT

Thank you so much for sharing your thoughts, some very thoughtful messages and so beautifully written, I am hoping you are a writer or are considering it. Id love to be a writer but you definitley have a gift, you did state every message in your post with such integrity, Thank you so much for the encouragement and I will definitely continue to be part of giving on the board. thank you again, cz

You are entitled!! We all have those days..why I am having one of those right now... It is always nice to get sincere support..I believe we all need it.. RSD has no sense of humor and we certainly need to feel loved..Well, you are loved on this site..we pull for each other and care... No worries, as you had a bad day..Next time it will be me!! Take care and we have your back..

keepsmilin, you made me smile! what a great message for me to start the day with . thank you so so much for your kindness and understanding, I love that you said "RSD Has no Humor",, so true and you remind me how important humor is if you can get to it through a day with this. thanks again for the warm support, i hope you will have a good day to day. sincerely, cz

are free and simple..they warm our hearts and let us know we are loved... CZZ74..and others here.. we got eachothers back.. I want to share this saying... as it brings tears to my eyes....

Life is not waiting for the storm to pass.... Life is about learning to dance in the rain...


We are all learning to do that as we have to.. but along the way as we learn dance..we feel loved.. which is so important!!!! thanks to eachother!