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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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WOW....This is wonderful

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Old 12-01-2009, 05:07 PM #1
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Default WOW....This is wonderful
Hi all,
I'm in my room in the hospital after having the pump trial implanted. I feel great. there isn't even any surgical site pain. Before surgery, pain was a 9, right now, maybe a 4. I can[t believe it. I can even touch my foot. If I had know it was this easy and this great, I would never have wasted time with the scs or anything else. No wonder it's hard to find a dr. that will do it. They will lose their patients except for emergencies and pump refills. I'll keep you posted tomorrow as to how it's going. I could be numb from the meds, but all I know is that I feel wonderful

Hugs
Mary
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Old 12-01-2009, 05:58 PM #2
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that's awesome! i'm so glad its working for u! i've never heard anything bad about the pumps. i tried to get 3 different docs to try one on me and they all refused because i'm in my 20's. it would be too much for my liver.... but once again i hope the pain stays super low for u!
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Old 12-01-2009, 05:58 PM #3
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Great news! Keep feeding us updates!!
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Old 12-01-2009, 08:18 PM #4
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Yeah Mary, I am so glad to hear there is relief. Much love Sandy


Quote:
Originally Posted by lostmary View Post
Hi all,
I'm in my room in the hospital after having the pump trial implanted. I feel great. there isn't even any surgical site pain. Before surgery, pain was a 9, right now, maybe a 4. I can[t believe it. I can even touch my foot. If I had know it was this easy and this great, I would never have wasted time with the scs or anything else. No wonder it's hard to find a dr. that will do it. They will lose their patients except for emergencies and pump refills. I'll keep you posted tomorrow as to how it's going. I could be numb from the meds, but all I know is that I feel wonderful

Hugs
Mary
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Old 12-01-2009, 08:45 PM #5
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YEAH for you!!! You deserve it...XOXOX Sandy
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Old 12-02-2009, 12:46 AM #6
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awesome awesome awesome........

what name and model of pump and what med are they trying first with you?
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Old 12-02-2009, 02:15 PM #7
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Yay!!!!!!!!!!!!
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Old 12-03-2009, 11:14 AM #8
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Glad you've got such great result, Mary!
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 12-03-2009, 01:40 PM #9
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well, here's an update. Morphine got the better of me. Started throwing up and even with all the mew meds out there, they couldn't get me to stop. Pulled the morphine to try to let me get better, THey just started Duiluid in the pump, and it's been almost 2 hrs, and and I haven't thrown up in a few hrs. so may be this will work. Well, hopefully i'll get discharged about 8 tonight and if the diluid works then I will get the perm in a couple of weeks. wish me luck with the new meds.

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Mary
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Old 12-03-2009, 02:14 PM #10
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Quote:
Originally Posted by lostmary View Post
Hi all,
I'm in my room in the hospital after having the pump trial implanted. I feel great. there isn't even any surgical site pain. Before surgery, pain was a 9, right now, maybe a 4. I can[t believe it. I can even touch my foot. If I had know it was this easy and this great, I would never have wasted time with the scs or anything else. No wonder it's hard to find a dr. that will do it. They will lose their patients except for emergencies and pump refills. I'll keep you posted tomorrow as to how it's going. I could be numb from the meds, but all I know is that I feel wonderful

Hugs
Mary
Glad to hear it and I hope for the best for you. It maybe the meds but, anytime without pain is a great time. At least during the pause or reduction of pain, your body can rest up and help rebuild your immune system. I'm sure we all hope that from now on your road is a smooth one and someone is following you all the way. Keep us updated on your progress. You will help others by your posts. Thanks again. mellowguy
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