[QUOTE=Breezy55;597095]So here come's my sob story. I am in so much PAIN that I do not even know if I can take any more! I am on Temazepam,Topamax,Clonazepam,Furosemide,Zolpidem,L orazepam,Methadone,Morphine Sulfate IR 30mg,Morphine Sulfate CR 100mg. I went to see my DR. who is a regular Dr. who see's everything. So he said there is nothing more that I can give to you. Everything that I am taking is not even touching my pain! [QUOTE]

Dear Breezy,

I'm really sorry that you are having such a hard time. The transition to cold, wet weather is awful.

I saw Dr. Getson last week. He is an extremely well known doctor specializing in RSD. When he saw that I was taking Methadone AND and opiate/morphine med for my pain, he said that it was counter-intuitive. You are apparently supposed to take either one or the other, but not both together. So he suggested that I drop the methadone from my line-up of meds. In his opinion, the two products work against each other for pain and you end up with less pain control you would otherwise.

IMHO, my pain has increased since eliminating methadone. But our weather also just turned a lot colder.

I just thought I would pass on what he told me, since you have both meds in your line-up like I did.

Another suggestion - if you are able, try to get outside and walk in the fresh air as much as you can. Bundle up, and find a friend (or grab a pet), and walk. I love it and it takes my mind off my pain for a while. For me its been the very best therapy since I got sick over 3 years ago.

Pleease take care, XOXOX Sandy

Breezy,

Like Kim mentioned, there are some drug combinations that just don't work well. It isn't always a matter of bad interactions, where the combination will cause problems. That's the type of thing the pharmacists check when filling a script. But knowing when a combination will reduce effectiveness is much more complex. That's one of the reasons I see a pain management clinic. I could easily get my GP to write me a script for a pain killer, but the Pain Management people have more experience with all of the different cocktails.

It's frustrating to have to wait to see a specialist, I know. Hang in there, though.

Kim was suggesting some simple meditation. That can really help in getting past some of the hard times.

I hope you get some relief soon.


Mike

Hi Mike and Breezy --

I've been with a Pain Mgmt Clinic in Boston for a year with a practictioner that I was under the impression was an excellent pain management doc. I have placed a lot of faith in him and trusted him, I thought he was good. So I have to admit that I am profoundly disappointed to just find out now about the Methadone not going with the opiates and morphine that I have been prescribed. How could it be that this is just now being disclosed to me? Plus, my head hurts much, much worse the last few days. I'm more than a little bit of a mess at the moment. In short - I am so confused. In desperation I might take some Methadone in a little while just to see if it will help me.

I like Kim' suggestion of the breathing a lot. Thanks Kim. I also like the meditation tapes that are available at the UCLA and UMASS websites:

http://marc.ucla.edu/body.cfm?id=22&oTopld=22
http://www.umassmed.edu/Content.aspx...d&itemid=41254

Take care everybody. XOXOX Sandy

I just wanted to take the time to thank all of you for you'r input on my current situation! It really means alot to me. I am not usually a downbeat person. However for some reason this pain has really done a number on me! It does help to know that all of you are out there to comfort me in you'r own way's! I guess sometimes what makes it so hard is that I live alone. With this RSD pain and with winter here it is getting so hard to do anything by my self! Even where I live in my apartment I have to walk up 20 strair's untill I get to my living space. You should see me when it's about -20 and I have about 10 bags of food to unload! Huff,Huff,Puff,Puff!! I hope that all of you have a Great Christmas! Pain or no pain at least we are still here! Always Breezy

try to relax stress is not good for this dragon , it will feed on it i have had this dragon for 31 years i now what you are going through but find something that will give you peace and try to relax do what you can do, try not to over load your system (yourself) god bless hang in there you are in my prayers