Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-13-2009, 01:35 AM #1
Kakimbo Kakimbo is offline
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Ahhh Jacciizzziiii. Please pay f9r this.................
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suz66 (12-14-2009)
Old 12-14-2009, 05:48 PM #2
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Default Jacuzzi

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Ahhh Jacciizzziiii. Please pay f9r this.................
Unfortunately, that is the one thing that they don't have. Heated pool, though.
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Old 12-17-2009, 11:31 PM #3
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Default exercise

I go swimming a few times a week but as the RSD progresses it is getting harder to do...But I push myself a little and do what i can. I feel better mentally after going for a swim. I use to do a lot- bike riding tennis etc but like all of you this RSD has robbed us of our fun! I hate it!!!!!

Debbie
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Old 12-18-2009, 05:16 PM #4
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Default Thanks everyone!

I did my first water aerobics class the other night and seem to have done okay. The worst part was walking into the AC locker room after being in the nice warm pool area! Brrrrrr! The water from the hot shower felt really good, though; once I got there. Ha! I really appreciate all the encouragement from all of you. I plan to continue, but at a slower pace. Thanks again, and best to you all. =)
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Old 12-19-2009, 05:33 AM #5
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Ahhh, "no pain no gain". Dear god I hate that line! I was a young gymnast and constantly heard that. "Work through it!" That's another good one.

I just wanted to commend you on getting out there and doing something good for yourself! It takes courage to do something where there is the possibility of it going wrong on you. And isn't it awesome when it works out?

I wanted to put something out there for all of the people with leg/back issues: I just got those Reebok Easytone shoes, and they are so WONDERFUL! You know the work out balance balls? It's kind of like there are little ones on the bottom of the shoes, and it helps you to almost roll into a step instead of bending as much. My bf got them for me and I've been absolutely loving them. (I've even been walking more lately, and out of the blue he commented that I'm not favoring my leg as much.) So that's a win! And they have bright neon green stripes on the side that make me feel faster! They're like racing stripes for slow people

Lynns
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Old 12-19-2009, 09:58 AM #6
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Default Hi Suz66,

I have tried exercising at places 3 times and couldn't do it. I joined Curves and got worse. My PCP came into the Curves place to look at the machines and said not to do it after me getting worse.

The second I joined last year. I thought I could do those machines and set my own pace, didn't work. I do have TOS though and using my arms and hands is almost impossible.

Yesterday, I talked to a lady that offered me personal yoga lessons. I don't want to waste anymore money. You join these things thinking you can do them and it just seems unlikely due to the pain we endure afterward.

I also think that by doing the vigorous exercises it makes things worse in the long run. We don't know what we are doing to the RSD while we are exercising but it comes out weeks and months later.

I try and walk everyday. I am very active with things around town here and the boys but walking seems to at least keep my weight at the same. I still need to lose some and the walking I hope will keep me from gaining over the Christmas holiday, it did through Thanksgiving. It keeps my legs moving but I can't find anything that works for my arms. Bands are a definate nono to me.

I would do like some of the others and try the water arobics. I couldn't keep up with the class of them due to my arms but I liked the warm water.

We have to all keep active somehow. It's very hard with being in the shape we are in. Some are worse then others and it's even harder for them but we just have to keep going.

I hope the gym works for you. After you try something in the gym that makes you worse, maybe just bypass it from then on.

Ada
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Old 12-21-2009, 02:08 AM #7
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Originally Posted by suz66 View Post
I did my first water aerobics class the other night and seem to have done okay. The worst part was walking into the AC locker room after being in the nice warm pool area! Brrrrrr! The water from the hot shower felt really good, though; once I got there. Ha! I really appreciate all the encouragement from all of you. I plan to continue, but at a slower pace. Thanks again, and best to you all. =)
Try the hot tub. It's wonderful.

Just do 5 minutes the first time since you might not be able to do more.
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Old 12-21-2009, 05:02 AM #8
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I did my first water aerobics class the other night and seem to have done okay. The worst part was walking into the AC locker room after being in the nice warm pool area! Brrrrrr! The water from the hot shower felt really good, though; once I got there. Ha! I really appreciate all the encouragement from all of you. I plan to continue, but at a slower pace. Thanks again, and best to you all. =)
My son also goes swimming a couple of times a week. I tell myself that swimming is one of the best exercises and its also fun, his sister can go also.

Gitte - Olivers mum
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