I have RSD in all 4 limbs from a car accident 3 years ago and had 2 SCS implanted 6 months ago that help me immensely with the neuropathic pain. But lately, I've been noticing a lot of RSD-like symptoms (burning, cramping, swelling) inside my belly. I can't tell if it's my stomach or intestines, but I swear I can FEEL those organs continually (which I don't think is normal), and if I take a painkiller, I don't notice those symptoms anymore. Also, my tastebuds seem to be destroyed, but return a little bit when I'm on pain medication as well. To anyone diagnosed with Full Body RSD, can you "feel" discomfort in your insides? I also noticed I'm having to work harder at breathing. My sister tells me that is from anxiety, but I don't feel anxious at all during the time period of those episodes.

Thanks!!! Vanna

Vanna, I'm sorry you are having these symptoms.I have had RSD for 15 years following surgery, and wasn't diagnosed for 4 years. About 6 years ago it went full body and internally, generalized. I have heat, burning internally in pelvic area. I haven't had any procedures like SCS, just spread. I'm going to see a gynecologist that has experience with RSD. I'm going to PM you some information on Internal RSD. I have read accounts that the implanting of the SCS can cause internal spread. I'm sorry if that is your case. I live in Phoenix and the summer here is miserable. the Sympathetic Nervous system controls body temperature, so that is pretty miserable in this climate. I'll look up some information and relay that to you. Your Az, friend, loretta with soft hugs

Hi Vanna, Did you get my private message? you to in the upper right hand corner under your name and 'Your Notifications' push that and then on the left-under private messages you can push that and receive private message.
Please let me know if you didn't get them, and I'll write you again and send you some information. your friend, loretta

Vanna, if you go back to your original question and go to the bottom of the page, you'll see a similar question by DEW58 and several answers from others on internal RSD and interstitial cystitis, which according to Dr. Hooshmand on rsdrx.com puzzles #127 is RSD. loretta

I'm so happy to hear from someone with a similar problem (and great knowledge on it!). I was beginning to think it may all be in my head, yet, at the same time, knew it wasn't! I will be seeing my RSD doctor (also a rhuemotologist) end of January and will now feel comfortable discussing this matter, as it seems like a significant, legit matter. I did receive your private messages, and I thank you sooo much for the effort you put into helping me and look forward to reading the posted article you attached

Vanna