Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-27-2009, 03:50 PM #1
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dreambeliever128 dreambeliever128 is offline
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dreambeliever128 dreambeliever128 is offline
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Default Hi Debbie,

I don't know if you are in councelling as the others said but boy does it keep me from drowning. When I had this car accident Wednesday, my Dr. called me and talked to me for over half an hour. He gives me the reason's why I shouldn't panic by not having a vehicle and having these injuries I now have from the car accident. I am definatley injured on the right side and neck so when I see him tomorrow he will have to check me out and see what I need to do next. I have had 5 surgeries on the right side and although I hit the window and broke it out on the left side, it hurt my right again. Had I not talked to him, I would have most likely dealt with my PTSD again.

Also, exercise as much as you can, if you just do walking everyday even for a little distance, I do believe it will help. My RSD started over 10 years ago and I can remember walking and crying everyday thinking I was crazy for doing it in such pain but as time went on, I got stronger. I have RSD internally and also have Interstital Cystitis and it was acting up very badly the night before my accident. I had a bad night with it. Here I was thinking I was going to see my Dr. to deal with it and now we have to deal with these other problems tomorrow.

Hopefully you won't have the muscle wasting. I have it in my right hand and so far that's it even though I have the RSD everywhere.

Keep a diary. I kept one for the first years. I filled up one and started another and it helped me to see how I was improving or what was not improving.

I'm sorry to hear you are having such a hard time with your RSD now. Hopefully you will be able to get some if not all of it calmed down soon.

Ada
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Old 12-28-2009, 07:56 PM #2
debbiehub debbiehub is offline
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debbiehub debbiehub is offline
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Default Hi

Thanks for all of your replys. The thing is my RSD is not settling down- it just keeps progressing since I had the hip replacement in 2003. The muscle wasting is the worst. I use to challenge people to arm wrestles and I was good. Now the thought of that makes my muscles twitch. Just so tired of this and scared. Vicodin is doing the trick with keeping me a bit happier and at this point in the game I am not going to worry about addiction. I take one a day-like the vitamin-lol....I already use a scooter at work- I have lost all the padding in my elbows and now that is happening with me knees- its very painful- yada yada- I could go on and on ,,,,,I will try and accept and hope

Debbie
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