Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-29-2009, 08:13 PM #1
loretta loretta is offline
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Quote:
Originally Posted by Scottish Girl View Post
Hi Sarah,

You're not alone!! I had a horrible time with sweating for a few months, especially round my head and face, but it's gone again. It seems to come and go. We're not known for our hot weather in Scotland, so I can't blame it on that.

I also get the nail changes which Pete mentioned, rapid growth for a few weeks, then nothing. I don't mind that so much, I've always had short nails so it's nice to have them long for a change. Unfortunately, it's only on my RSD hand so I look a bit odd.

Hope you're ok, I'm sorry that doesn't help much. Take care.
Hi Sarah and Welcome-the sweating goes with RSD because it's an autonomic disorder. Our sympathetic nervous system controls body temperature, circulation and and the immune system. So I try to build my immune system up with eating healthy foods. Exercise, stretching to keep the circulation going. Swimming is one of the best-water needs to be 86 degrees. I live in Arizona, which gets to 110 and higher in the summer. That's a huge challenge, but the winters are mild and that's a blessing. We have company 2-3 times a year in the winter of friends wanting abreak from cold, rain, snow country, and I'm going to try and take a break or two from our outrageous hot summers and visit Oregon Coast and Washington State. We love our friends visiting and enjoy going back'home' during the summer here.
Again, welcome to this wonderful group of friends. Hope you find comfort and knowledge here like I did. It's been 15 years for me and full body. Take care and please stay with us. Your friend, loretta with soft hugs
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Old 12-30-2009, 12:20 AM #2
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Hi Guys

As with so many aspects of RSD, it's reassuring to know I'm not the only one dealing with this symptom, but I wish no one else had to deal with it at all. And weirdly enough, I just opened Neurotalk to chat about this exact problem!

My sweating issue is out of control. For me, it mainly affects my face, head, neck and upper body. It can happen at any time. We're in the middle of a hot Australian summer at the moment but in a way that's irrelevant as I get just as sweater when it's cold and the house is cold, than I do when it's hot.

My body temperature regulator has also gone out of control in the past few months (I'm always sweating when everyone else is cold, and vice versa), and my fingernails on my RSD hand have also changed- breaking constantly (often with the top layer of the nail breaking, not always all the way through), vertical ridges down my nails, etc etc.

It seems that after I hit my 9 year RSD anniversary in November this year, my body/rsd has decided to step it up and notch and take me into a whole new phase of my RSD progression. I've always been kinda relieved when I've read other RSDers talk about their sweating symptoms that I didn't have that to worry about. Now that's all changed

The sweating issue has made me so cranky at my body. I can't put on make-up or do my hair without having to do it a zillion times. As soon as I apply my foundation, I sweat it off.

Although I have one daughter with ringlets and two with dead straight hair, my hair is in the middle- with some parts going wavy, some straight and all of it frizzy and boofy, lol. But if I try to dry my hair with the hairdryer, I have to have a hand towel next to me to wipe the sweat from my face, hairline and neck as I go, so I may as well not bother or get in the shower again!

If I'm going out, I use a straightener for my hair but as soon as my hair is straight, I start sweating again and then my hair frizzes up all curly and looks crazy!

I'm SO over the sweating!

I'll ask this here but I might also start a spin-off thread so more people can answer, but can anyone recommend a good foundation (liquid or powder) that can handle a bit of sweat and not come off as soon as you put it on?

I know this all sounds really vain and it's a small problem I have in the big scheme of things, but I'm in my early thirties and my medications give me really bad skin as it is, so I just want to look nice and feel good about how I look, even if my body is far from normal in other ways... that's not too much to ask, is it?!

I've just bought a small hand-held fan (as I'm always having to wave a magazine/piece of paper in front of my face to cool me off) and that's helping, but has anyone got any other tips for dealing with the chronic sweating?

And if anyone could recommend a good foundation that stays on well I would really appreciate it, I don't mind how much it costs- I'm spending a fortune on foundation now because I have to keep re-applying it all day!

x Kate
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RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS.
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Old 12-30-2009, 09:11 AM #3
Swatgen27 Swatgen27 is offline
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Everyone, thank you for sharing about your experiences. My name is Sarah and I live in Chicago and I'm 27.
As for my original post: I suspected the sweating was caused by the RSD but I was not sure. Now that I know this is a problem relating to the RSD I will take everyone advice and try to mangae this issue. I have had the night sweating issue for at least the past year but this day time sweating is the pitts. Not to mention it always happens at the worse time (large family dinners, working e.g). I also have a problem with sweating when I get ready in the morning. I recently changed makeup foundations and now I use the Super Stay Makeup foundation by Mabelline. It stays on even when I have my sweating episodes.
I have to say that this really sucks that the sweating is caused by the RSD as that means it is just one more thing i have to manage and one more thing that makes me feel self conscious. I'm sorry if I'm being negative but these last few weeks I have been really difficult. I guess I'm just tired of fighting this weird disease and the Holidays just seem to remind me that yet another year has gone by and during the past year all my symptoms of this disease just seem to be getting worse. Sorry, now I'm rambling and really I dont want to add any negativity to everyone elses day. In fact that is why I have not been particpating in the group lately because I just know I'm in a bad place. I hope everyone has a good Holiday.
Sarah
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Old 12-30-2009, 03:20 PM #4
SandyRI SandyRI is offline
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I don't wear much make-up - but I will spray on a tan occasionally. The best I have found for my skin, which is pretty fair, is the "Quick Tan" tanning mist by body drench. I buy it from my hairdresser. It is moderately expensive, more than some but less than the real pricey stuff. For my pale skin tone I think it looks better than any of the others that I have tried. And it doesn't sweat off (but will rub off on lighter colored clothing).

I like "tanning" better than make-up because I have become really, really pale since becoming sick, and I can spray this on my face and neck and chest to make myself look a little bit more alive. With the tan I don't really feel that I need to add any other cosmetics (not that I ever did anyway....).

Good luck to you all. I wish there was a med that worked on the sweating factor...often I am freezing cold instead of sweating. Right now I am sitting with the heating pad on my wrists because my fingers are so frozen I feel like I am typing with pieces of wood. And my feet - they are just numb.

XOXOX Sandy
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Old 12-30-2009, 06:38 PM #5
keep smilin keep smilin is offline
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Angry Sweating vs freezing...

Quote:
Originally Posted by SandyRI View Post
I don't wear much make-up - but I will spray on a tan occasionally. The best I have found for my skin, which is pretty fair, is the "Quick Tan" tanning mist by body drench. I buy it from my hairdresser. It is moderately expensive, more than some but less than the real pricey stuff. For my pale skin tone I think it looks better than any of the others that I have tried. And it doesn't sweat off (but will rub off on lighter colored clothing).

I like "tanning" better than make-up because I have become really, really pale since becoming sick, and I can spray this on my face and neck and chest to make myself look a little bit more alive. With the tan I don't really feel that I need to add any other cosmetics (not that I ever did anyway....).

Good luck to you all. I wish there was a med that worked on the sweating factor...often I am freezing cold instead of sweating. Right now I am sitting with the heating pad on my wrists because my fingers are so frozen I feel like I am typing with pieces of wood. And my feet - they are just numb.

XOXOX Sandy

Sandy...

Iam with you lately.. Although I have had the bouts of sweating which are pretty ugly and totally unpredictable.. but lately I have been the opposite...freezing..as with RSD..nothing is simple..one extreme to another... I got myself another pair of slippers last night and even wore em to bed! They lok a bit like gorilla feet..fury and soft..but what ever it takes..RSD has a zero sense of humor...
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