Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 01-16-2007, 04:29 PM #1
septmystic's Avatar
septmystic septmystic is offline
Junior Member
 
Join Date: Jan 2007
Location: PA
Posts: 68
15 yr Member
septmystic septmystic is offline
Junior Member
septmystic's Avatar
 
Join Date: Jan 2007
Location: PA
Posts: 68
15 yr Member
Default Fentanyl Patch

Very good advice from Lisa! I am on the fentynal patch 75, I started at 50. I did not experience the nauseau perhaps because the first few days on the patch I was so relieved to not have pain. That was short lived. I had no initial side effects and even now they are not too bad. But when that 3rd day comes to change it I am a wreck, typical signs that my body is craving more than the patch is giving. This is my 3rd year on the patch, the only other meds I take are percocet for break through and ambien to sleep and maxalt on occasion for migraines. I am very careful to limit the heat (bad thing for the patch, even long hot showers are not good). I also limit my percocet. I take between 2-3 a day some days none, I have to be really cringing. I am used to pain but sometimes it gets too much, as I am sure you all know. The nauseau I experience is from percocet but a small amount of ice cream helps! Yeah for Ben & Jerry's. As far as the patch, it should be used only after other meds are explored. I have been on so many and so many discarded until the patch was used. I am lucky and do not get a "high" from it. It just helps me get through the day, well some days without pulling my hair out. Some of the drugs I have been through - Neurontin, Lyrica, Cymbalta, Zoloft, Amitryptilan and Nortryptilan, zanaflex, darvocet, serzone, and a bunch of others. Nothing worked for me until the patch but each person is different. Please use the patch with caution, read the pamphlets that come with the drug and search the internet for other info. This is not a drug to use uninformed.

Smiles - Septmystic
septmystic is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Crazychris818 (10-21-2012)
Old 01-16-2007, 11:01 PM #2
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default Fentanyl

I think I will hold off for now-thanks for all your info....

Deb
debbiehub is offline   Reply With QuoteReply With Quote
Old 01-17-2007, 10:10 AM #3
LisaM's Avatar
LisaM LisaM is offline
Member
 
Join Date: Oct 2006
Posts: 276
15 yr Member
LisaM LisaM is offline
Member
LisaM's Avatar
 
Join Date: Oct 2006
Posts: 276
15 yr Member
Default

Quote:
Originally Posted by debbiehub View Post
I think I will hold off for now-thanks for all your info....
Deb
Deb, can I ask why? Did I scare you?

Like Septmystic, I also experience no "high" from it at all. I feel completely normal. MUCH better than when I was on oral meds all the time, and much better than if i'd have to increase the dosage of oral meds. Also, the only time I get nauseus now is when I take my regular daily meds - so I just take them with milk, and I don't get that nauseous feeling.

Did I say something to scare you away from the patch?
__________________
Hugs,
LisaM

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~
Visit My Message Board - Helping Custodial Parents Collect Child Support From Deadbeats for 7 Years
.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~
right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
LisaM is offline   Reply With QuoteReply With Quote
Old 01-17-2007, 10:08 PM #4
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default TY

No you didnt say anything to scare me...I have sooo many medications that I dont take in my medicine cabinet! I am going for some stalite ganglion blocks- I will see how I do with that first....

Deb
debbiehub is offline   Reply With QuoteReply With Quote
Old 01-18-2007, 09:29 AM #5
buckwheat
Guest
 
Posts: n/a
buckwheat
Guest
 
Posts: n/a
Default

http://www.fda.gov/bbs/topics/news/2005/NEW01206.html
  Reply With QuoteReply With Quote
Old 01-18-2007, 03:08 PM #6
flippnout's Avatar
flippnout flippnout is offline
Member
 
Join Date: Oct 2006
Location: Back forty, MO
Posts: 159
15 yr Member
flippnout flippnout is offline
Member
flippnout's Avatar
 
Join Date: Oct 2006
Location: Back forty, MO
Posts: 159
15 yr Member
Default

I read a news artical of a women in my state who was on the fentanyl patch. She was moving to a new house and it was summer she was so busy packing and loading things all day and was getting tired she laid down in bed and her kids found her dead, it seems the heat and the sweating made the patch stronger it was so sad to read the story of how her young kids found her.
flippnout is offline   Reply With QuoteReply With Quote
Old 01-18-2007, 10:38 PM #7
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default Thanks

Thanks for the info and the article! will keep it in mind...

Deb
debbiehub is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Generic Fentanyl-Duragesic Patch Ragtop Chronic Pain 25 01-20-2012 02:30 PM
Parkinson's Patch Nears U.S. Approval Stitcher Parkinson's Disease 6 01-04-2007 04:00 PM
Question...patch... sallyb Chronic Pain 7 12-14-2006 08:59 AM
Just Switched to the Patch labar914 Chronic Pain 14 11-29-2006 12:51 AM
Scopolamine Patch and MRI ?????? labar914 General Health Conditions & Rare Disorders 2 10-25-2006 02:20 PM


All times are GMT -5. The time now is 01:00 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.