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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Junior Member
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Very good advice from Lisa! I am on the fentynal patch 75, I started at 50. I did not experience the nauseau perhaps because the first few days on the patch I was so relieved to not have pain. That was short lived. I had no initial side effects and even now they are not too bad. But when that 3rd day comes to change it I am a wreck, typical signs that my body is craving more than the patch is giving. This is my 3rd year on the patch, the only other meds I take are percocet for break through and ambien to sleep and maxalt on occasion for migraines. I am very careful to limit the heat (bad thing for the patch, even long hot showers are not good). I also limit my percocet. I take between 2-3 a day some days none, I have to be really cringing. I am used to pain but sometimes it gets too much, as I am sure you all know. The nauseau I experience is from percocet but a small amount of ice cream helps! Yeah for Ben & Jerry's. As far as the patch, it should be used only after other meds are explored. I have been on so many and so many discarded until the patch was used. I am lucky and do not get a "high" from it. It just helps me get through the day, well some days without pulling my hair out. Some of the drugs I have been through - Neurontin, Lyrica, Cymbalta, Zoloft, Amitryptilan and Nortryptilan, zanaflex, darvocet, serzone, and a bunch of others. Nothing worked for me until the patch but each person is different. Please use the patch with caution, read the pamphlets that come with the drug and search the internet for other info. This is not a drug to use uninformed.
Smiles - Septmystic ![]() |
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"Thanks for this!" says: | Crazychris818 (10-21-2012) |
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#2 | ||
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I think I will hold off for now-thanks for all your info....
Deb |
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#3 | |||
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Member
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Quote:
Like Septmystic, I also experience no "high" from it at all. I feel completely normal. MUCH better than when I was on oral meds all the time, and much better than if i'd have to increase the dosage of oral meds. Also, the only time I get nauseus now is when I take my regular daily meds - so I just take them with milk, and I don't get that nauseous feeling. Did I say something to scare you away from the patch?
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Hugs, LisaM ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~ Visit My Message Board - Helping Custodial Parents Collect Child Support From Deadbeats for 7 Years . ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~ right Side TOS Decompression Surgery 12/2005 RSD Exacerbated after surgery Still have TOS on left side RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist |
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#4 | ||
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Member
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No you didnt say anything to scare me...I have sooo many medications that I dont take in my medicine cabinet! I am going for some stalite ganglion blocks- I will see how I do with that first....
Deb |
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#6 | |||
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Member
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I read a news artical of a women in my state who was on the fentanyl patch. She was moving to a new house and it was summer she was so busy packing and loading things all day and was getting tired she laid down in bed and her kids found her dead, it seems the heat and the sweating made the patch stronger it was so sad to read the story of how her young kids found her.
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#7 | ||
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Member
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Thanks for the info and the article! will keep it in mind...
Deb |
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