Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-14-2010, 11:53 PM #1
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Hi Snowboarder,
Thank you for the heartfelt poem that comes from the wisdom you already possess in your youth...
Poetry is a universal language that can reach so many..

Keep writing and maybe even set it to music...
Stay warm during these days of winter chill...

Hope4thebest
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SandyS (01-15-2010)
Old 01-15-2010, 12:22 AM #2
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Good work
straight from the heart, and emotionaly true,RSD seems to run a course of destruction ,IT is so hard to stay focused and to keep ones composure, It is a disease not for the weak,or it is to make the weak strong. People do not understand the constant pain with wasting away of the flesh and emotions and zeal,,Some people and Dr;s think that we have psychological problems such as bipolar to M.S They do not know or realizethat it is the constant pain and stress on an everyday level without a day off. I sometimes compare it to haveing a pit bull hanging from my hip,or my hand caught in a slamed car door,with no one to come by and help.
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SandyS (01-15-2010)
Old 01-15-2010, 01:20 AM #3
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Quote:
Originally Posted by bobber View Post
Some people and Dr;s think that we have psychological problems such as bipolar to M.S.
Just to clarify.........M.S. is not a psychological illness.
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Old 01-15-2010, 04:09 PM #4
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Kitty I don't he meant that M.S..is psychological. He was just making a reference.

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Just to clarify.........M.S. is not a psychological illness.
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Kitty (01-15-2010)
Old 01-15-2010, 04:33 PM #5
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This is a beautiful poem- thank you for sharing it with us. I think I have shared my writings with maybe 2 people! Somehow that seems to be one of the most personal things.

I would just like to reiterate that a problem is a problem no matter what it is. And it doesn't make our problems any better when we compare them to something that someone else has. Bipolar disorder can cause intense suffering- it's just different from RSD. MS can cause intense suffering- it's just different from what we have. There is no better or worse. I remember one of my friends breaking an ankle and him saying "Oh man, I won't talk about this because what you have is so much worse." My response to something like this has always been, no- if something bothers you or causes you pain, then it is important.

I'd just like to put that out there. While this is a place for us to share our feelings about RSD, it doesn't make anything better to do that at the expense of others.

Lynn
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Wilbyfree (01-22-2010)
Old 01-15-2010, 06:02 PM #6
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Thank you so much for the beautiful poem-It made me cry-I sent it to everyone in my address book.
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Old 01-18-2010, 11:15 AM #7
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Hi everyone,

Just wanted to let you all know that this was a poem I wrote back in 2008 when things were paticularly tough. No problem with anyone posting this but would appreciate it if they could state that it isn't theirs.

Thanks.

Alison
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Old 01-18-2010, 12:52 PM #8
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Dear Jeremy,

You, my friend have a gift. Through your pain you have found a positive creative part of you that you may have never known existed. Keep writing, continue to explore the good things that you can do. On a really bad pain day, I wild out in the kitchen. I did not know I was such an exquisite cook. Actually, my family makes jokes about my pain days because they know when they are served a five course meal that I had a bad day. I use to just lay on the couch and report to each one of them that they were on their own for dinner because I had a bad day! Then I realized my gift, and the joy it brought to the hearts of the ones I love and I challenge myself to use that gift every chance I can.

I have to take my medication, I cannot stand on my feet long so I take a lot of breaks, and my pain is really bad afterwards, however I discovered that whether I cooked or didn’t the pain was about the same and I was able to share something that I can do with my loved ones. Please keep writing, share your gift as you have, you have comforted many hearts today and nothing is forever, we are all just a part of the puzzle that hasn’t been solved yet!

God Bless, and looking forward to reading more.

Jeanie
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