Thanks KS
I think your right,,The vibration from the TENS unit aggravated mine,,not right away but a few hrs later after i had turned it off,,,so i waited until the pain calmed down as well as the flare and fire engine reddness that it produced,the i tryed it the next day and had the same result,,I have found That RSD doesnt like vibration at all,,at least in my case,,your last post triggered a memorey,,When I first felt anything to suggest that I had a serious problem,was I was riding my wifes V-Twin and the vibration on my right heel,went nutsso,,,before that day,,only dorso flexing the ankle[which longated the trapped nerve] would aggarvated it along with a hot bath,makes it sting,,right where the nerve is trapped.......Thats another reason why im leary of the SCS,,but im intriggedwith any idea to manage this disease and to hopefully get a remmission....Bobber

Hi Loretta
If you look at the time lines,When you posted ,,I was posting at the same time answering KS,,,,I want to persoanl thank you for your concern for everyone on this forum, and your wisdom and empathy towards others,,you as well are a treaasure from the Lord,,,As for sleep,i do sleep pretty good, I really need to back off of caffeeine,I think it increases my pain levels,,But i noticed when my liver and gallbladder 2 months ago were inflammed,I was forced[if I wanted to live,,to go cold turkey off everything,[percocet,Xanax] and between being physically ill from the liver and gallbladder ,,I was withdrawing from the meds inwhich make you even sicker,i was bedridden for 4 weeks,,but I also [because of the gallbladder and liver issues] had to eat plain rice,frozen vegtables only,,,,,i was misable,,but i had 2 weeks of no pain at all,,,But now my diet isnt as good and im in pain again,,,Im also more mobile when i can,,what a vicious cycle,,,,,Thank you all for your support,and I do appreciate reading everyones posts,,,,may you have a pain free nite,,,,,bobber

Wez gotz a great family here!!!!... don't we????????

Goodnite Johnboy

My name is Rae
I havn't been on here for several days and i feel a bit guilty of that, as i've wanted to be a better support to all the ones here who have given me so much support.
KS, Vanna, Mary, and so many others here - wonderful people!

I'm kinda in the same boat you are in Re: SCS. I did the trial, seemed to do what it's supposed to do and so now I'm in the
"in-between" time of getting the permanent.
I have many questions, doubts, etc same as you are facing. It does so much good to just hear other's testimonies, and take note of what they've been thru and all the good suggestions they pass on.
So, in that regard, it's kinda a 'good' thing that there is this
6 wk (or so) waiting period.
I'll need to read back thru some of your previous posts to see exactly what your battle is, but just know you are most certainly NOT alone.
Feel free to PM me with any Q's and we can compare notes or whatever. The more people we are in touch with, the better.
So, just wanted to make myself available to you and perhaps you will have input that will help me (and others!)

And for the rest of this wonderful 'Walton Family'
I see the frustrations you are facing and my prayers are with you all......you've been there for me in my greatest times of need. We are in this together.
Truly Caring
Rae

Rae...

What are your reservations concerning moving forward with the permenant SCS unit??? Ask away...

KS

I dunno.....mainly i guess it has more to do with how the docs seem to end up treating the pts. once they get their paycheck for the SCS. I've heard it from other sources that they (pain docs) like to push these SCS's so that they can 'wash their' hands of us and turn us over to the 'Reps'. My nearest rep is 3 hrs away.
The doc who does my SCS is real good at what he does. But i also think he's a bit 'over-confident' and he isn't very good at sitting down with his pts. and really explaining on a level that we can understand and grasp on to. It just leaves us with all these loose ends.
I'm not stressin too much about it, but like Bobber, just want to hear from as many as possible because this is where the true heart and soul is. The medical professionals certainly are too busy (or whatever) to talk on this level.

Great question for Rae, KS!! Also, Rae, what worked for me in the decision-making process after I did the Trial was ........ did I miss not being able to use it?? For me, obviously, the answer was yes. I craved the sensation the stimulator gave me more than I did pain medication. LOL!

Vanna

I think to answer alot of your doctor/patient questions... ask your doctor to speak to patients of his that currently have SCS. My dr is huge on support, and actually makes you talk to a few prior patients of HIS to answer any questions, feelings of fear, doubt, or concern before the surgery takes place so we are 110% 'there' for the implantation. He does not want us going into it doubting him as a surgeon/doctor or us as patients as it is a procedure that takes alot of strength and patience... Also, he had me talk to someone where the SCS did not help, just to prepare me.
After speaking to patients of his, it made the decision easier as I knew how he as a doctor dealt with problems or any issues that arose afterwards. I am thankful, my Dr. smashed those feelings before I even felt them!!! He see's so many patients and knows the change and difference the true understanding of one rsd patient to the next.