Mom,

Have they ever tested her ANA, for Lupus, My daughter she is 16 and has RSD and she has had the flushing as well, she has had in the past positive ANA's and then negitive. they are usually positive when she is in a hard flare...Ask your doctor during the next visit. Insist on blood work, how was her RSD disagnosed? Does she have other underlying medical conditions???? i would love to talk with you if you have some time. You can pm me your phone number or we can talk by email...

Thanks Sandy

Thank all of you for your informatilon and help.

This is a 62 yro friend (I just happened to be the one he call for a ride from the airport when he was injured on the North Slope of Alaska during the worst oil spill on the slope "06". Had a quad tendon rupture (laid on ice unknow how long at 40 below) before he was discovered. This was a 4/5 foot fall from a hi cub van. Ortho said it may be CRPS after 9 months - pain managment confirmed with block and temp/color changes. He then developed upper body symptoms (dr dx was independent spread). Had a trial SCS and went well - during attempt at perm one - In OR when it was turned on it went to both feet (they could not keep him under the pain was so bad).
It is a w/comp case (GOODY-GOODY) so he has been tested for any and everything.

This last flare was really bad. His dr has said he has a severe and rare form of CRPS (one says he has weird ****, the other one reads his report and say DR. J says you are screwed - well at least they are honest).

With this reddness/itch - it appears it may be dermatitis. But the dermotolist says that with him all bets are off because of the CRPS. He has given him a ointment called CLOBETASOL PROPINATE and it does seem to help with the inflammation (redness) and the itching. Has him in setopress wraps (on the lower legs) for 6-8hrs a day for the swelling.

We do the eposn salt soaks and it does help. The drs were amazed that after he had the block how quickly the upper body cleared and the blistered foot started to heal.
He became a diabetic in 07 - a year after the accident - but it is well controlled - his last two A1C were 5.8. He is on two metformin a day and does try to do pool PT three times a week. Other than diabeties and CRPS he is healthy. The bad part is living in alaska - he is 6'4" about 280 lbs - can not stand much to touch him from the thighs down so travel would be a real challange - as he is not weight bearing.

Again - thank to all of you and my you are all in my thought as you stuggle with this horrible disorder.