Originally Posted by Wilbyfree

Dear Mom/Daughter,

I hope that your daughter's treatment went well and she has gotten some relief. I cannot imagine being a child and trying to understand and manage this illness, I am so sorry she is inflicted with this pain.

I too have a daughter who broke her left hip and pelvic, as we were in the same auto accident. She does suffer from post traumatic arthritis and pelvic pain (nothing compared to RSD) and I had bilateral fractures that resulted in RSD/Causalgia. Over the years, I have learned and taught my daughter many holistic and natural resources to help manage pain. Heat, relaxation tapes, relaxation techniques, hot baths, exercise, TENS unit, meditation, (not medication), therapeutic massage, water therapy (we joined together), and many more. She was fifteen at the time, she is now twenty three and she still uses some of these techniques and they are helpful. As a mother, I feel your pain, I spent two years in a wheelchair my daughter was in one for six months, I spent every waking moment trying to find ways to comfort my daughter through her pain. I had many of sleepless nights due to the medication that the doctor prescribed that she violently vomited, finally, I turned to old fashion remedies and new holistic natural therapies and they began to work, I never stopped any medical attention. Please look into the holistic approach for your daughter, it is only a supplement to the medical treatment that you are trying now, but I promise you will find a resource that will be helpful for her and ease the pain through the flare ups.

I apologize if I offended you or anyone else about the use of the TENS Unit. You asked if anyone had any experience with RSD and the Tens Unit, I simply answered the question: I do have RSD/Causalgia, and I have had a positive response to the TENS Unit. I simply shared my experience and how it works for "me". Sharing what works for you should NEVER be mistaken for "self medicating,” and I would hope no one would ever take the advice or suggestion of another person and apply it to their situation without consulting a doctor. That should just be a given and Loretta already addressed that. If we can't share our experiences, worries and victories then I am terribly confused.

I hope that you and your daughter find peace, balance and coping skills that will ease you both through this difficult time.

P.S. I listen to healing tapes at night to help ease my pain, when my parents stay with me over the holidays, my Father always wakes up and says that is the best nights sleep he has had in a long time. Maybe it’s the tape, maybe it’s just being with family and finding comfort, either way, it’s all about love and the comfort of another human being.

God Bless
Jeanie

Originally Posted by momw/rsdchild

We just got back today from Dallas having spent all week getting my daughter IV treatments of ketamine and lidocaine to take down her pain. She is doing much better now. Of course her pain is still there but not near as bad as it has been. This doctor is amazing but he is so far from us now that we have moved. We just hate to switch. We have been dealing with this illness for 3 1/2 years now so while I am new to this site I am not new to RSD. Sadly. Thanks for your encouragement and welcome. By the way, the doc says its fine to use the TENS unit. They have used it on her in the hospital many times but I never pain attention to where they put the leads. That's all I was looking for as far as lead placement. I'm sorry if anyone got the wrong idea. No intention of doing anything to aggravate her condition further that's for certain! It's good to be home now. Let's just hope her pain relief continues for a long time!