Thanks for your replys- I wonder what is actually happening to the bone? would it show on an MRI? Has anyone had relief with morphine. Vicodine is not touching it...

TY
Deb

Hi Deb,

Here's a good description of the pathophysiology of bone pain from Wikipedia.

There could be many reasons for bone pain, don't just chalk it up to RSD. As I understand it, it really depends on the what the cause of the bone pain is as to whether or not it would show on an MRI, neuropathic pain doesn't show up on an MRI. I've always had deep bone pain right from the beginning, more so than the burning. My recent MRI didn't show much so I was sent for a CT scan and just waiting on those results. Since you say that this is a new symptom for you you should probably consider having your doctor check you out.

Warm wishes

MsL

Hey deb
Yes ,RSd does deterorate bone density,,thats one reason why they encourage us to move,,the nerve damage that RSD causes,trys to shut down that limb for deteroration,but by forceing movement,we prolong the bone loss,,but to directly answer you question,,,The dr;s recommend a BONE SCAN....I had one and it show how much bone loss thru out my feet and hip and shoulders and pelvic , that im loseing,,It also shows hots spots,,meaning infected areas,that you may not even feel pain in yet,,It is a good dignostic test to help prove you have RSD to who ever doesnt believe you,,,,As for the meds,,The morphine sulfate release 15 mg ,,didnt help me,but I thought that {cake] on this forum was getting relief from it,,oxycotin and methadone are said to help..I dont have those,,but I as well as {fmichael} get relief from anti depressant for break thru pain,,,,xanx will bring my pain from an 8 to 6 everytime, { .05 mg],

During my (early) days of rsd, before I got some real meds, I explained rsd pain like this, quickly;
Your bone marrow feels as though it's on fire,
your skin feels as though it's in a blast freezer.

I take methadone, (Have for almost 20 years), and it controls that deep bone burning pain very well.

I'm not a doctor, you need your doctor to verify what is causing the pain, and as is usual with rsd, rule other things out.
Then, carry on with medication.

Wish you the best!
PM me if you wish..

Pete

Debbie
I had severe bone pain when I first got RSD... it continued for a few years, then gradually went away.

My Rheumatologist prescribed Miacalcin Nasal Spray (Calcitonin) .... hope I spelled those right... anyway, it took a few weeks to get the full effect, but it made a huge difference in my "deep bone pain".

Jules

Hi Jules,

Now that you mention the calcitonin I remember that when I was taking it my bone pain was less intense. I stopped taking it because I developed sensitivities to the nasal spray and would have horrible sneezing fits. Perhaps I should give it a try again.

Tks

MsL