Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 01-23-2010, 05:45 PM #1
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default Bone Pain

I don't understand what is going on with my leg. Like I said the muscles around my hip and butt are so tight I can barely walk and I am getting horrilbe thigh bone pain! I can't freaking take this anymore!!!!!!!!!!!!!!!!!!!!!! I can this new symptom (thigh bone pain) come on so fast. I am getting on the baclofen slowly but so far it is not helping. Any suggestions for what might work for bone pain

TY
Debbie in the dumps
debbiehub is offline   Reply With QuoteReply With Quote
Old 01-23-2010, 07:48 PM #2
edever34 edever34 is offline
Member
 
Join Date: Mar 2009
Location: Louisville,Ky
Posts: 227
15 yr Member
edever34 edever34 is offline
Member
 
Join Date: Mar 2009
Location: Louisville,Ky
Posts: 227
15 yr Member
Default

I use a heating pad for about 20 min.at a time-Not permanent relief but temporary is better than nothing-Hope this helps-Carol
edever34 is offline   Reply With QuoteReply With Quote
Old 01-23-2010, 08:40 PM #3
vannafeelbettr's Avatar
vannafeelbettr vannafeelbettr is offline
Member
 
Join Date: Dec 2009
Location: suburb of Philadelphia, PA
Posts: 147
10 yr Member
vannafeelbettr vannafeelbettr is offline
Member
vannafeelbettr's Avatar
 
Join Date: Dec 2009
Location: suburb of Philadelphia, PA
Posts: 147
10 yr Member
Default I feel for ya

I know that pain you speak of and it's horrible!! When I am in desperate need of relief, I do the warm, epsom salt baths and they help me a lot. And I also keep an eye out for anyone with a chainsaw so I can cut my legs off when they get to feeling like that. Grrrrrr.........
vannafeelbettr is offline   Reply With QuoteReply With Quote
Old 01-23-2010, 09:28 PM #4
Mslday's Avatar
Mslday Mslday is offline
Member
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Mslday Mslday is offline
Member
Mslday's Avatar
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Default

This is a tough one. There is some research that suggests that bisphosphonates help with the deep bone pain for people with RSD so it could be something you could check into.

After my severe allergic reaction to pamidronate infusions I'm ruled out as a candidate for this class of drugs. Although my reaction is considered rare it was no fun and this class of drugs does have many risks.

I haven't found anything else to lower the bone pain but as others here suggest, heat is a life saver. I prefer to use my hot wax machine for my foot and hand.

Good luck.
MsL
__________________
"When humans learn to be gratefully present every moment, they become angels. It’s not the wings that make the angel, but the message of courageous presence and creative acceptance, no matter what the moment brings: “Fear not!”" Gratefulness.org
Mslday is offline   Reply With QuoteReply With Quote
Old 01-23-2010, 10:27 PM #5
bobber bobber is offline
Member
 
Join Date: Jun 2009
Posts: 497
15 yr Member
bobber bobber is offline
Member
 
Join Date: Jun 2009
Posts: 497
15 yr Member
Default

I have bone pain as well,I had a total hip replacement done and i have severe pain in the joint . Im taking anti-inflammatorys ,sometimes they seem to help and other times,i was taking celebrex 200mg and had no relief,,As edever and vanna posted,,heat helps,I use both,dry[heating pad and wet heat [bathtub],,wet heat is always better,,Ive noticed that anti depressants such as xanx seems to knock my bone pain down from an 8 to a 6 and its consistant,,I really hope and pray that God comes soon,,
bobber is offline   Reply With QuoteReply With Quote
Old 01-23-2010, 11:13 PM #6
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default TY

Thanks for your replys- I wonder what is actually happening to the bone? would it show on an MRI? Has anyone had relief with morphine. Vicodine is not touching it...

TY
Deb
debbiehub is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Bone & Joint Pain Life Style Coach Reflex Sympathetic Dystrophy (RSD and CRPS) 9 01-15-2012 11:56 AM
Help for sharp, stabbing, intense bone pain please? Mslday Reflex Sympathetic Dystrophy (RSD and CRPS) 16 10-15-2009 04:14 PM
Who Else? Severe Bone Pain CZZ74 Reflex Sympathetic Dystrophy (RSD and CRPS) 22 09-03-2009 10:41 AM
Warning--FDA Warns On Severe Bone, Muscle Pain With Bone Drugs moose53 Women's Health 4 01-08-2008 04:14 PM
Anyone bone grinding pain after spinal surgery? Alicia07 Spinal Disorders & Back Pain 1 11-05-2006 09:00 PM


All times are GMT -5. The time now is 12:40 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.