Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-30-2010, 08:50 PM #1
mellowguy mellowguy is offline
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Originally Posted by keep smilin View Post
I have to ask..when RSD gets you down..where do you dream of re-treating to????? When you are forced to make life long changes in your life and others around you, your support system just carry on with their day...do you find yourself feeling sad or lost..best described as empty....

I have for a very long time thought of going to a mountain...a place where I can be alone and think..feel the warm breeze and even cry for myself...

Any of you have a place that you think about????

I send each of you, my friends a hug! KS
keep smilin....I too have always wished to have a place that gives me peace and comfort like nothing else will. Having crps for 15 yrs. now, I have waited for the special place to forget the pain and anxiety that can bring my mood to a lonely state, to materialize and make my search worth finding. I found that place by searching in the area I thought it would be. I try to get there at least once a yr. I take in the serenity and the beauty long enough to stay with me for the rest of each year. That special place is in the Grand tetons in wyoming. I think of it when my pain keeps me from living my life. I hope you find yours and it brings you comfort as well as peacefor youer soul. mellowguy
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Old 01-30-2010, 09:00 PM #2
keep smilin keep smilin is offline
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keep smilin....I too have always wished to have a place that gives me peace and comfort like nothing else will. Having crps for 15 yrs. now, I have waited for the special place to forget the pain and anxiety that can bring my mood to a lonely state, to materialize and make my search worth finding. I found that place by searching in the area I thought it would be. I try to get there at least once a yr. I take in the serenity and the beauty long enough to stay with me for the rest of each year. That special place is in the Grand tetons in wyoming. I think of it when my pain keeps me from living my life. I hope you find yours and it brings you comfort as well as peacefor youer soul. mellowguy
So Mellowguy.... It is real!! Seems we all have a safe haven somewhere and you have found yours... I am so tickled that you did and I bet when you first discovered it and knew this was the place for you..you must have felt so "re-newed".. Like the first thing since RSD that you can went your way!! This sounds really crazy but I have times when I feel I could just exit and look for mine but know that my family would be crazy looking for me as the grocery store is a not even a solo trip for me!! Then again admittably, I can't go to the store alone as my condition limits me now... One thing for sure..we all have a place we want to visit in order to re-collect ourselves since RSD.... So how long do you stay at the GT in order to feel better and ready for the following year?? RSD.... What an animal!!!
Thanks for your note...KS
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Old 01-30-2010, 09:20 PM #3
mellowguy mellowguy is offline
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So Mellowguy.... It is real!! Seems we all have a safe haven somewhere and you have found yours... I am so tickled that you did and I bet when you first discovered it and knew this was the place for you..you must have felt so "re-newed".. Like the first thing since RSD that you can went your way!! This sounds really crazy but I have times when I feel I could just exit and look for mine but know that my family would be crazy looking for me as the grocery store is a not even a solo trip for me!! Then again admittably, I can't go to the store alone as my condition limits me now... One thing for sure..we all have a place we want to visit in order to re-collect ourselves since RSD.... So how long do you stay at the GT in order to feel better and ready for the following year?? RSD.... What an animal!!!
Thanks for your note...KS
well...I stayed as long as I could which was 1 week. I toured the area and found a serene place called Jenny Lake. The water is so pure you can drink from the lake since it is mountain snow fed. I took a chance going htere because your on your own there. No cell phone coverage or people. At the point I was feeling at the time,,I didn't care at all. I felt like I woke to a new beginning of my life. What works for some people doesn't work for all,,this worked for me. my pain was forgotten for the time I was there. I would go back in a heartbeat if i could. Thhanks for the reply...mellowguy
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Old 01-30-2010, 10:17 PM #4
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well...I stayed as long as I could which was 1 week. I toured the area and found a serene place called Jenny Lake. The water is so pure you can drink from the lake since it is mountain snow fed. I took a chance going htere because your on your own there. No cell phone coverage or people. At the point I was feeling at the time,,I didn't care at all. I felt like I woke to a new beginning of my life. What works for some people doesn't work for all,,this worked for me. my pain was forgotten for the time I was there. I would go back in a heartbeat if i could. Thhanks for the reply...mellowguy
Well then..you have found your spot!! It's a big world but if you or should I say we all can find the spot that makes us feel relaxed and make one with ourselves again.. then we then have at least an edge on our RSD... One day I will make it to my mountain...it will have to be an air lift drop as my RSD is in my legs, the worst and I am afraid of heights.... but in my mind my mountain experience will be much like the Bucket list!! I am setting no clocks...cell phone stays home and spray my loved ones as I don't want to be missed....

Thanks for your reply...
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