Hi Sukadog
I've had the 5-day trial SCS. Mine would be for both legs tho, so I don't know much about the upper units. There are several here who will give good input for you.
The only real negative feedback I've heard is the potential for RSD spread with these stimulators.
Anxious to see what feedback you get
Good Luck

Rae

I have a SCS for my RSD in my right arm and shoulder. I am 20 years old... It helped me alot. I got hurt again and had to get ketamine... Where are you located at? How old are you?

There are pro's and con's to getting it and not getting it. There is always a chance of the RSD spreading when you get it, but for me... I took the chance knowing that it could help me and i could gain so much of my life back and get off medications. Especially feeling at the point of having nowhere to go but there... there are physical limitations, but then again RSD gives you physical limitations so its best we don't do that stuff. Any specific questions? you can pm me if you'd like to ask anything

I totally totally second this! I love my SCS. Ive gone through some revisions of the leads, and it has been a journey, but I wouldn't trade it for the world. It makes me function, and it makes me function with way less medication than I would have been on. If you look up some old threads, I wax a bit more poetically on the subject than I am right now. But if you have any questions about it, feel free to ask or pm me.

Hope this helps!
Lynn

I have had my SCS unit, wired for both legs since Sept. 08. Admittably, I don't turn it on as it irritates my RSD and it has caused spread, now RSD in my left shoulder, hip and right side of my jaw...... Everyone feels differently about having their unit. Some positive some negnative... you really just have to decide if it is worth the gamble and follow your feelings... could be a wonderful help to you or it may be a henderence.... Sorry but none of us can give you the exact answer in which route to follow....I've heard the pain pump is a good option...

Wish I had the magic answer for you... please let me know if I can help you...KS

This study may be of interest.. I would do alot of research on any new procedure before trying it myself, remember this is just one study, one opinion.

Brush-evoked allodynia predicts outcome of spinal cord stimulation in Complex Regional Pain Syndrome type 1

http://www.europeanjournalpain.com/a...ext#back-bib12

Be well,
Sandra


http://www.facebook.com/pages/RSDCRP...2468621?ref=ts

Thank you Sandra! I'll definitely read it!

Thanks so much for your response! I'm very sorry that it was such a terrible experience on top of the pain and frustration of the original RSD. I hope something helps relieve your pain. Thank you.

Yes, you can use microwave, and go through detectors. I actually was at the airport last month and went through the security and didnt even beep!!!! wow that was nice i didnt need to get the pat down... the trick is turn the SCS OFF before going through!!

I used to be an avid volleyball player and i did yoga everyday. I still do yoga except just in modifications. It will take about 6 months till you can bend alot without having to worry... but now i do normal yoga classes and unless i feel the cord pulling i can pretty much do everything. the only thing I am limited to is alot of poses on my hands (downward dog). My wrist is not strong enough for that... but everything else in yoga I can do. We cant do roller coasters... any sudden jerky movements... and yoga def is not sudden or jerky. My dr actually recommmends pilates and yoga to keep the muscles limber and stretched from spasms. I need to get into the routine of going more often though Any other questions?? Also, my incision site is on my right hip... i recommend putting it on the OPPOSITE side that you normally sleep on... yeah... learned the hard way.. Any other questions?

This is very encouraging!!!! Thank you!

Hello, I highly recommend trying Calmare Pain Therapy (Scrambler Therapy).

There is a clinic that does this in Florida, so you are lucky as it is new to the U.S. My daughter and two other people we met via networking successfully had the treatment. All 3 were suffering from RSD/CRPS and have been pain free since the treatments. One person had her SCS removed prior to treatment as the SCS wasn't working well. **. We were skeptical at first as it almost sounds too good to be true after all we'd been through, but now consider it a medical breakthrough! No more blocks, no more drugs, no more pain!

Do yourself a favor and look into Calmare. Good luck.

Carol