Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-29-2010, 06:04 PM #1
rsdwife rsdwife is offline
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rsdwife rsdwife is offline
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Default ? for lost mary

Lost Mary-
question for you. How did the oral pain meds work compared to the pain pump. My husband went thru all kind of pain meds to finally find diluadid worked the best, however he still had considerable amount of pain, enough that limited a lot of his daily activities. He has since had the scs and is very happy, but just wondering if you knew how the pain pump worked vs the oral pain meds. Our scs rep had mentioned if the scs didn't work after the trail, the pain pump would be the next best option in his opinion.

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Old 01-29-2010, 06:42 PM #2
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I was on Opana 30mg ER. twice a day. The amt of Diluidad that I've started on is giving me the same pain relief as the Opana. THe one advantage is that I'm not suffering from the meds being in any other part of my body. I'm not suffering from feeling foggy headed, and the other organs in my body don't have to keep removing the meds. The ration is abt 1/300 of what you would get in the oral meds. When I go Tue to get the staples out Tue, I'm going to get a small increase, as I want it better then what I had before. I'm so glad that the stim is working for your DH. It worked a little for me, but the buzzing wasn't great and after a short bit the rsd spread and the stim didn't work to help it. I'm glad your rep has mentioned the pump. there isn't any set limit to the meds that can be used. It's 24/7 so there is no fluction of meds. I love mine. I've never felt better or more alive. I can think again, I see the sun come up and I'm excited for what I will be able to do again. I'm horrible at waiting, but I'm being good during recovery so I will heal. I found the recovery from this surgery was sooo much better then the stim. I felt great the day after surgery with this. With the stim, I was in bed crying for over a week...actually for both my stim surgery. So if this doesn't work for him, look at getting the trial for the pump. I know ppl who actually have both and each one does what it needs to do. That is a thought.
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Mary
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