Hi! I was diagnosed with RSD in March of 2009. I see an ortho doc and a pain managment/anastheoligist. They used a triphase bone scan and did some temperature test to confirm the diagnosis. These two doctors work hand in hand with my case and are so great. I could not ask for better docs. I hope all goes well and you can find you a great doctor like I have.

I have had steroid injections in my back for my back pain and I can not move for weeks after I have had them. It might help my knee but it will not help with my back pain and that is why I will not get the shots. While I was getting those shots I did not have any knee pain. So I will have to find something else that will help with the RSD. I go tomorrow to see this new knee specialist and see what he says. I hope that he can tell me something. Wish me luck for tomorrow. Thanks for everything.

Ruby

I'm glad that you were able to find some great doctors. None of the doctors that I have seen has not said anything about tests. They are just looking at my knee and leg and says that it looks like RSD. I hope that I can find out soon if I have RSD or not. I have tingling in my leg now. My knee is starting to go cold too. But my pain is just a constant pain, the pain does not burn. Good luck with your RSD. Ruby

Ruby ofte times pre dx and after the treatment is the same. Before I was dx I was doing the same treatments as after. I still am glad I got such extensive testing like really beyond because it was to rule out other conditions then rsd. You need to get diagnosticly tested. I know that my pain doc says that some docs will say it is rsd because they don't know what it is but it may not be. In the mean time I still think you need a pain doc/anesteslogist. You can still go to the specialists. Have you been to a neuro? This is an important doc to see this could be a seperate nerve condition like I have PN too. Especially with the tingling you are having.

I seen the new knee specialist today. He said that it could be a pinched nerve in my knee or RSD. He is putting my on a nerve med. to see if that will work, if not then I go in to get tests done to see what is wrong with my knee and leg. I'm on the nerve meds. for about 3 weeks. So it is back to the waiting game. I go in next week to start getting shots in my knee to see if that will help with the pain too.

Ruby

I seen the new knee specialist today again. He said that there is no reason for the pain that I have in my knee and leg. He said that I don't have RSD while he was walking out the door. And he said that I don't have a pinched nerve any where. Thanks everyone for talking to me. And I will let you alone now, since I don't have anything wrong. Sorry for bothering you.

Ruby

I have chimed in on this or not yet..but Rubvk2.. are you feeling a bit upset..perhaps sad now?? Possibly fustrated and back at square one?? I see it..and you are NOT a bother..We all here care and take care of eachother....Let my first say we all here you in that fustration can be our middle name any given day..Don't let the Dr.'s aggravate you..You know you still have pain... possibly you don't have RSD, can I say..you really don't want that..as I have it beginning in my rt. knee, 3 yrs. ago.....and I am not allowed to swear on here but it hurts..now many places on my body hurt due to it's spread..but this does not ..does not rule out that you should get discouraged and not push to get an answer to what it really wrong..Allow yourself to feel discouraged only for a bit..thats enough..now get those boots on and march yourself to another Dr...one who doesn't say things about your health as he walks out the door..rude! ..And don't stop until you have a compassionate Dr. who can supply you answers and take care of you....


KS..Kathy

I would go see another doctor, but I don't have the money and my husband says that it is fine with what the doctor says and to leave it at that. He says as long as the neurontin works for the pain that is good enough. I'm going to go in and have the supartz injections in my knee soon. After what that doctors said that I don't care anymore. And it seems like I don't care about anything anymore. I'm going to just let it go and deal with it on my known. My family doctor will give me the meds that I need. I'm going through the same thing as I did with my back problems. The doctors said that is all in my head too, and I still have pain in my back. But I deal with that on my known too. I try not to let anyone know if I hurt or not, because it does not do any good to let people know my pain. And I just didn't want to bother you people with my pain when your pain is much worse than mine. Thanks for listening.

Ruby

Hi Ruby - I'm sorry that you are so frustrated. Pain is a scary thing in and of itself and then when you have different doctors telling you different things that just puts stress on you, which in turn, causes more pain. It's a vicious cycle. When I saw that you were going to get the shots in your knee I had to respond. PLEASE be very careful! You had a couple of doctors suspect RSD and if so, a shot to that area can cause it to spread.

I had surgery on my wrist over 2 years ago and the only symptom I have is burning pain. I've had 2 doctors suspect RSD (Neurologist/Pain Dr.), 2 Hand Surgeons say absolutely not RSD, 1 ER doctor even told me to get an attorney ha! However, I guess my point is to show you that you don't need to have all the symptoms and most doctors do not know what they are dealing with.

Please do not give up. You will find a way!

Tiff

My rsd I think took awhile to get dx cause it did not have all the symptoms and how i got it was different too. Then I saw a couple of RSD specialists who also said you don't have to have all them to have rsd. Many of these specialists like podiatrist are not that familiar with RSD. In the start of this I became worse because of being put in an airboot and had no injury for ex. Did you say if you have been to a neuro? I think this is a key doc to preform dx tests to rule out other conditions. I have PN and RSD so sometimes there is more then 1. Also a pain doc/anesetesolgist who deals with rsd. Also you said you are going to get an injection in your knee? Is that your RSD area cause if RSD you are not supposed to inject into the area. Hang in there