Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-27-2010, 08:43 PM #1
rubyvk2 rubyvk2 is offline
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Frown Thanks

Thanks everyone for your help and kindness. I'm going to go see my family doctor tomorrow and see what he says. And I'm seeing my knee specialist on Feb. 11 to see what she says. I will not get the injections in my back, because I will not be able to get out of bed for a week or more after I get the injections. I have had the injections in my back, but they were for my back pain. I have been reading about RSD and I'm starting to get scared about it. Is there other treatments out there besides the injections? I just wish this would go away.

Thanks,
Ruby
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loretta (01-28-2010)
Old 01-27-2010, 09:07 PM #2
bobber bobber is offline
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hi ruby,,,,,,,I hope and pray that you dont have RSD,,listen to the advice to the upper posts and you might want to see a pain management Dr to get an RSD dx.....dont put it off,,if your in the early stages ,its inperaative that you get all the vastly need care that you can,,,,Im hopeing you can get blocks injections to slow it down,,,as Ada noted ,a good anesthologist and pain managementdr;s are a very good way to start to get the Dx that you need,and the proper care,,,,Time is an issue and is a valuable thing not to waste when dealing with RSD,best wishes,,,,I do hope that its anything else but rsd,,,,
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Old 01-28-2010, 08:16 AM #3
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Quote:
Originally Posted by bobber View Post
hi ruby,,,,,,,I hope and pray that you dont have RSD,,listen to the advice to the upper posts and you might want to see a pain management Dr to get an RSD dx.....dont put it off,,if your in the early stages ,its inperaative that you get all the vastly need care that you can,,,,Im hopeing you can get blocks injections to slow it down,,,as Ada noted ,a good anesthologist and pain managementdr;s are a very good way to start to get the Dx that you need,and the proper care,,,,Time is an issue and is a valuable thing not to waste when dealing with RSD,best wishes,,,,I do hope that its anything else but rsd,,,,

Good morning all...

Hello Ruby.. Time is of the esence.. And I third Ada, in that neuologists altho one would think they would be the Dr. of choice for this condition..i saw many and would not give you two red pennies for them.. i treat with a PM Dr. he has the most vast knowledge.. At this time 3 yrs. into my RSD..it has spread and makes each day a challenge but it is my life now.. plz. move quickly and find a good RSD Dr. as to take steps early for intervention.... The very first question to the Dr. is..do you know about RSD??? If they look at all puzzled and don't take you seriously.... move on to another Dr. .. immediately...

Lean on us here..we are a family worth hanging with...

KS
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Old 01-28-2010, 08:29 AM #4
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Hey. I am sorry you are facing this. When I first developed this pain condition I had no injury and did not have all the signs of RSD. I do have RSD with another condition PN. It is very key to see some one who works with RSD a lot. I agree about the pain doc. My neuro after I was dx with PN stated he felt I also had RSD but did not know that much about it other then the meds which are used for both. I se you are from MI where I am from. I traveled to Ohio but also saw some docs in MI. I am from Oakland County but if you want I am here and can try to help you. I have seen basically every specialty from reumos,endos,neuro,multiple pain doc. Its been a long road with a lot of opinions. Hang in there
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Old 01-28-2010, 12:01 PM #5
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Hi everyone, I just got back from my family doctor and he said that it looks like RSD. He is getting my medical records from my knee specialist and then sending me to a pain management doctor. So I can find out for sure that I have RSD and be able to manage it. I can't get the injections in my back because of my back problems, so I have to find a different way to manage the RSD. I hope that there is a different way to manage it. I'm starting to get scared about this RSD, I hope that I can manage it so it does not get bad. I think I'm getting closer to finding out what is wrong with my leg, if I have RSD or not.

Thanks,
Ruby
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Old 01-28-2010, 12:48 PM #6
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Ruby,

I have just started going through this as well and reading up on everything I can find. It IS scary, but everything that I have been able to find about people having success overcoming the condition (not meaning they are pain free but meaning that they regain function and the ability to do a lot of things) is keeping a positive attitude. Don't let your fear get in the way of recovery, but I am scared to death of all the what-ifs. But I try to be rational (most of the time) and talk myself down when I find myself focusing on my fears instead of taking it one step at a time and working towards the best result possible...whatever that might be. Sorry that you are going through this and I will be sending my wishes your way that you do not have RSD.
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Old 01-29-2010, 03:47 PM #7
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Ruby,just a thought for you. When I first found out that I had RSD. I had a Dr. do an EMG. This way you can see how far your's has progressed. Or maybe you already know where you are with this? I also wanted to welcome you to this wonderfull and caring group here! Breezy55
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Old 01-29-2010, 08:39 PM #8
rubyvk2 rubyvk2 is offline
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Frown seeing a new knee specialist

I go see a new knee specialist on Feb.3. I will find out what that doctor has to say. I hope that it is good news. I don't know were I am with this RSD or if I even have it. That is what I'm trying to find out. I'm almost thinking of saying forget about finding out, because it costs to much money. Sorry I'm not in a good mood tonight. My leg is just killing tonight. It has been hurting all day today. I don't think the doctors are going to do any test on my leg. The doctors have not even talked about any tests. My family doctor thinks that I have RSD too. I will talk to you guy tomorrow. that is if I can get on the net tomorrow. I have to work all day tomorrow.

Bye
Ruby
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